Condition

Primary Ciliary Dyskinesia clinical trials and research

• 11Clinical trials
• 9NIH research projects
• 4Countries

Newest Primary Ciliary Dyskinesia clinical trials

All recruiting trials (11)

• Bronchial hyperresponsiveness in children with primary ciliary dyskinesia

  This will see if children with primary ciliary dyskinesia have sensitive airways (bronchial hyperresponsiveness) by using a methacholine breathing challenge and related tests.

  Recruiting Indiana University · Indianapolis, Indiana · NCT07288827

• PALMIRE cohort: phenotyping inflammatory lung diseases to enable personalized care

  This project will collect clinical, imaging, and biological data from adults with asthma, COPD, bronchiectasis, cystic fibrosis, primary ciliary dyskinesia, or interstitial lung disease to try to identify disease subtypes and markers that could guide more personalized care.

  Recruiting CHU de Reims · Reims · NCT07274631

• Thermal spa treatment to improve symptoms of primary ciliary dyskinesia

  We will try a 3-week thermal spa treatment in adults with primary ciliary dyskinesia to see if it improves ear, nose, and throat symptoms, lowers infection and antibiotic rates, and helps hearing and lung function.

  Recruiting Association Francaise pour la Recherche Thermale · Nice · NCT07029594

• Glycine and magnesium plus thiamine for primary ciliary dyskinesia

  This trial will test whether daily oral glycine and magnesium with thiamine, alone or combined, can help people aged 5 and older with primary ciliary dyskinesia clear mucus and breathe better.

  Recruiting Instituto Nacional de Enfermedades Respiratorias · Mexico City · NCT06959251

• Observational study on Primary Ciliary Dyskinesia

  This study looks at people with Primary Ciliary Dyskinesia to see what factors might affect how severe their condition is and to help improve their care.

  Recruiting at 18 sites Institut National de la Santé Et de la Recherche Médicale, France · Besançon and 31 other locations · NCT05951478

• Using nasal nitric oxide testing to improve diagnosis of primary ciliary dyskinesia

  This study is testing if a simple nasal test can help doctors diagnose primary ciliary dyskinesia in people aged 2 and older who show symptoms of the condition.

  Recruiting Connecticut Children's Medical Center · Hartford, Connecticut · NCT05889013

• Nasal nitric oxide testing for better care in primary ciliary dyskinesia

  This study is trying to see if measuring nitric oxide in the nose can help doctors diagnose primary ciliary dyskinesia more accurately for patients at Arkansas Children's Hospital.

  Recruiting Arkansas Children's Hospital Research Institute · Little Rock, Arkansas · NCT05287022

• International cohort study of patients with Primary Ciliary Dyskinesia

  This study looks at how ear, nose, and throat problems affect people with Primary Ciliary Dyskinesia and their lung health, while making sure participants get their usual care.

  Recruiting University of Bern · Bern · NCT04611516

• Impact of COVID-19 on people with Primary Ciliary Dyskinesia

  This study is trying to see how COVID-19 affects people with primary ciliary dyskinesia and what their experiences are during the pandemic.

  Recruiting University of Bern · Bern · NCT04602481

• Evaluating diagnostic tests for Primary Ciliary Dyskinesia

  This study is testing how well nasal nitric oxide testing works for diagnosing Primary Ciliary Dyskinesia in people who are being checked for this condition.

  Recruiting Vanderbilt University Medical Center · Nashville, Tennessee · NCT03704207

• Registry for patients with Primary Ciliary Dyskinesia in Switzerland

  This study is creating a registry to collect information about people with Primary Ciliary Dyskinesia in Switzerland to help improve understanding and treatment of the condition.

  Recruiting University of Bern · Bern · NCT03606200

NIH-funded research (9)

Early-stage science funded by the US National Institutes of Health. Most of these projects don't enroll patients, but they show what is being worked on.

• Personalized therapeutic oligonucleotides for primary ciliary dyskinesia

  A new therapy approach uses customized RNA-based medicines to help people with Primary Ciliary Dyskinesia, a rare lung condition, by correcting how genes are read in airway cells.

  NIH research Univ of North Carolina Chapel Hill · Chapel Hill, United States · NIH-11432843

• Pathogenesis and New Treatments for Primary Ciliary Dyskinesia (PCD)

  Researchers are studying why Primary Ciliary Dyskinesia causes lung and airway problems and how to develop better treatments for people with this condition.

  NIH research University of Iowa · Iowa City, United States · NIH-11353875

• New genes behind primary ciliary dyskinesia

  This project looks for new genes that cause primary ciliary dyskinesia to help people with chronic respiratory infections and related complications.

  NIH research Northwestern University · Chicago, United States · NIH-11243545

• How a lung cell protein (cytoglobin) affects cilia movement and organ placement

  Researchers are looking at whether the airway protein cytoglobin controls nitric oxide and cilia motion in ways that could explain primary ciliary dyskinesia and situs inversus.

  NIH research University of Maryland Baltimore · Baltimore, United States · NIH-11234292

• Understanding and treating Primary Ciliary Dyskinesia

  This study is looking at a pig model of Primary Ciliary Dyskinesia (PCD) to better understand how the condition affects breathing and to find new ways to help improve the lives of people living with PCD.

  NIH research University of Iowa · Iowa City, United States · NIH-11096761

• Finding new genes that cause primary ciliary dyskinesia

  This study is looking for new genes that cause primary ciliary dyskinesia (PCD), a condition that affects breathing, to help make faster and cheaper tests for it, using a special model from frog embryos to learn more about how cilia work.

  NIH research Northwestern University at Chicago · Chicago, United States · NIH-11045856

• Understanding how a protein affects cilia movement and organ development in airway diseases.

  This study is looking at how a protein called cytoglobin helps tiny hair-like structures in your airways work properly, which is important for people with primary ciliary dyskinesia (PCD) and related breathing problems, with the hope of finding better ways to diagnose and treat these conditions.

  NIH research University of Maryland Baltimore · Baltimore, United States · NIH-10993662

• Improving remote health measurements for patients with primary ciliary dyskinesia

  This study is looking to make it easier and more reliable for people with primary ciliary dyskinesia (PCD) to take health measurements from home, so they can join clinical trials without having to travel far, and it could also help others with chronic lung diseases.

  NIH research Seattle Children's Hospital · Seattle, United States · NIH-10656216

• Understanding respiratory flare-ups in primary ciliary dyskinesia

  This study is looking at why people with primary ciliary dyskinesia (PCD) often have sudden worsening of their breathing problems, and it aims to find out how viruses and bacteria might be involved, so we can come up with better ways to help manage these flare-ups.

  NIH research Univ of North Carolina Chapel Hill · Chapel Hill, United States · NIH-10655640

Related topics

Quick answers

How many Primary Ciliary Dyskinesia clinical trials are recruiting right now?

11, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.

Where are these trials running?

In 4 countries. The most sites are in United States (4 trials), France (3 trials), Switzerland (3 trials), Mexico (1 trial). Each study page lists its sites and which ones are recruiting.

How do I join one?

Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.

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