Improving remote health measurements for patients with primary ciliary dyskinesia
Clinical Trial Readiness - Primary Ciliary Dyskinesia (CTR-PCD)
['FUNDING_R21'] · SEATTLE CHILDREN'S HOSPITAL · NIH-10656216
This study is looking to make it easier and more reliable for people with primary ciliary dyskinesia (PCD) to take health measurements from home, so they can join clinical trials without having to travel far, and it could also help others with chronic lung diseases.
Quick facts
| Phase | ['FUNDING_R21'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | SEATTLE CHILDREN'S HOSPITAL (nih funded) |
| Locations | 1 site (SEATTLE, UNITED STATES) |
| Trial ID | NIH-10656216 on ClinicalTrials.gov |
What this research studies
This research focuses on enhancing the quality and reliability of mobile health measurements for respiratory endpoints in patients with primary ciliary dyskinesia (PCD). By establishing optimal conditions for these measurements, the project aims to facilitate participation in clinical trials, especially for patients who may live far from research centers. The approach leverages remote monitoring to improve access and potentially reduce the number of participants needed for future studies. The findings will not only benefit PCD clinical trials but also have implications for other chronic lung diseases.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with primary ciliary dyskinesia, particularly those who may have difficulty accessing traditional clinical trial settings.
Not a fit: Patients without a diagnosis of primary ciliary dyskinesia or those who do not experience respiratory issues may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to more accessible and efficient clinical trials for patients with primary ciliary dyskinesia.
How similar studies have performed: Other research has shown success with remote monitoring approaches in chronic lung diseases, indicating a promising avenue for this study.
Where this research is happening
SEATTLE, UNITED STATES
- SEATTLE CHILDREN'S HOSPITAL — SEATTLE, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: ROSENFELD, MARGARET — SEATTLE CHILDREN'S HOSPITAL
- Study coordinator: ROSENFELD, MARGARET
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Bacterial Infections, bacteria infection, bacterial disease