Condition

Neurofibromatosis Type 1 clinical trials and research

• 7Clinical trials
• 3Countries

Newest Neurofibromatosis Type 1 clinical trials

All recruiting trials (7)

• How common NF1 is in Egypt and how it progresses and is treated

  This project will look at people in Egypt with neurofibromatosis type 1 to see how common it is, what symptoms they have, how it changes over time, and how it is managed.

  Recruiting at 5 sites AstraZeneca · Al Mansurah and 8 other locations · NCT07221331

• Assessing appearance concerns in Neurofibromatosis Type 1 patients

  This study is trying to understand how appearance-related concerns affect people with Neurofibromatosis Type 1 by gathering their thoughts and experiences through questionnaires and discussions.

  Recruiting National Institutes of Health Clinical Center (CC) · Bethesda, Maryland · NCT06880991

• Evaluating HLX-1502 for Neurofibromatosis Type 1

  This study is testing a new treatment called HLX-1502 to see if it can help adults with Neurofibromatosis Type 1 who have growing or painful tumors.

  Recruiting at 14 sites Phase 2 Healx Limited · Birmingham, Alabama and 13 other locations · NCT06541847

• Pupillometry to measure pain and sensory problems in people with NF1

  This study will test whether the AlgometRx Nociometer, a pupillometry device, can measure pain and other sensory problems in children and adults with NF1.

  Recruiting at 2 sites National Institutes of Health Clinical Center (CC) · Washington D.C., District of Columbia and 1 other locations · NCT06507748

• Assessing the burden of rare skin diseases

  This study is trying to understand how nine rare skin diseases affect the daily lives of patients and their families, including their emotional, social, and financial challenges.

  Recruiting at 6 sites Institut National de la Santé Et de la Recherche Médicale, France · Bobigny and 14 other locations · NCT05954416

• Using advanced MRI and AI to find early signs of cancer in children with Neurofibromatosis Type 1

  This study is trying to see if advanced MRI scans and artificial intelligence can help find early signs of cancer in children with Neurofibromatosis Type 1.

  Recruiting Cedars-Sinai Medical Center · Los Angeles, California · NCT04763109

• Investigating genetic factors in childhood cancer

  This study is trying to find out if certain genes passed down in families can increase the risk of childhood cancer by looking at samples from kids who have had cancer and their relatives.

  Recruiting St. Jude Children's Research Hospital · Memphis, Tennessee · NCT03050268

Related topics

Quick answers

How many Neurofibromatosis Type 1 clinical trials are recruiting right now?

7, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.

Where are these trials running?

In 3 countries. The most sites are in United States (5 trials), France (1 trial), Egypt (1 trial). Each study page lists its sites and which ones are recruiting.

What phases are they in?

Phase 2: 1. Trials with no phase listed are usually device, behavioural or observational studies.

How do I join one?

Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.

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