Kids CoLab: Helping kids with kidney disease take an active role in decisions about their care
Official title: Kids CoLab - Supporting collaborative decision making with youth impacted by chronic kidney disease
Funded at Seattle Children's Hospital · NIH-11391279 · Data updated 2026-11-12
A project to help children with kidney disease learn to participate in decisions about their own care as they move from pediatric to adult health services.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Seattle Children's Hospital NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project start | September 1, 2022 |
| Project end | June 30, 2027 |
| Funding year | 2026 |
| Award (this year) | $592,843 |
| NIH project number | 5R01DK131134-05 |
| Project ID | NIH-11391279 on NIH RePORTER |
Who could benefit from this research
✓Could help
Children and adolescents with kidney disease (including late-stage CKD) who are transitioning toward adult care and their caregivers.
✕Less likely to help
Youth not approaching the transition phase or those without access to supportive care teams may see limited direct benefit.
What this research studies
This program focuses on empowering kids and teens with kidney disease to share their values and preferences in medical decisions, in a developmentally appropriate way. It uses collaborative decision making to involve patients, families, and clinicians as youth gain self-management skills. The study plans to test and refine tools and processes that support youth-led decisions during the transition to adult care, with a goal of reducing kidney-related complications and improving long-term outcomes.
Why it matters
Potential benefit: If successful, it could help CKD youth manage their health better and reduce risks during transition to adult care.
How similar studies have gone: Previous work suggests structured transition programs improve engagement, but this project tests a collaborative decision-making approach in CKD youth.
Where this research is happening
-
Seattle Children's Hospital
Seattle, United States Active
Researchers
- Principal investigator: Pollack, Ari — Seattle Children's Hospital
- Study coordinator: Pollack, Ari
Related research
Other NIH-funded projects on the same topics.
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Helping young people with chronic kidney disease make health decisions with their caregivers
This project creates tools and support to help children and young adults with chronic kidney disease learn decision-making and self-care skills together with their caregivers as they move to adult care.
-
Helping kids with chronic kidney disease make better health decisions
This study is all about helping kids and teens with chronic kidney disease learn how to make better choices about their health as they move from pediatric to adult care, so they can feel more confident and in control of their treatment.
-
Improving communication for dialysis decisions in older patients with kidney disease
This study is all about helping older adults with chronic kidney disease make better choices about dialysis by training doctors to communicate more effectively and coaching patients and their caregivers to express what matters most to them.
-
Personalized CKD-MBD care using systems biology and AI
A patient-facing program aims to tailor mineral-balance therapy for people with chronic kidney disease by using a computer model and smart decision rules to predict who will respond best to treatments.
-
Mitigating DKA in people with type 1 diabetes and kidney disease using SGLT1/2 inhibitors
This project tests a new way to prevent dangerous diabetic ketoacidosis in people with type 1 diabetes and chronic kidney disease who are using SGLT inhibitors, by tracking ketones in real time and combining glucose-keton data for safer therapy.
-
Chronic Kidney Disease in Children: following young people as they grow up with CKD
A long-term study in kids with chronic kidney disease tracks kidney function and heart health as they transition into adulthood.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.