Helping young people with chronic kidney disease make health decisions with their caregivers
Kids CoLab - Supporting collaborative decision making with youth impacted by chronic kidney disease
This project creates tools and support to help children and young adults with chronic kidney disease learn decision-making and self-care skills together with their caregivers as they move to adult care.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Seattle Children's Hospital NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project ID | NIH-11161453 on NIH RePORTER |
What this research studies
You and your family would work with doctors, researchers, and other families to design ways for young people to practice health decisions in a safe, guided way. The team will use interviews, workshops, and pilot sessions to build age-appropriate decision supports that match each child’s abilities. They will try these supports with youth, caregivers, and clinicians to see how well they help with everyday choices and medical follow-up. The project follows participants over time to track changes in self-management, decision involvement, and health events during the move to adult care.
Who could benefit from this research
Good fit: Ideal candidates are children and adolescents with chronic kidney disease who are preparing for or going through the transition from pediatric to adult kidney care, along with their caregivers.
Not a fit: Infants, adults who are already established in adult care, or people without chronic kidney disease are unlikely to be eligible or see direct benefit from this project.
Why it matters
Potential benefit: If successful, this could help young people take on health responsibilities more confidently, reduce complications during the transition to adult care, and improve long-term kidney outcomes.
How similar studies have performed: Collaborative decision-making approaches have helped people in other health areas, but applying these methods specifically to youth with CKD during transition is a newer and less-tested effort.
Where this research is happening
Seattle, United States
- Seattle Children's Hospital — Seattle, United States (Active)
Researchers
- Principal investigator: Pollack, Ari — Seattle Children's Hospital
- Study coordinator: Pollack, Ari
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.