Survey of physical activity and quality of life for people with fibromuscular dysplasia

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study will deliver an electronic REDCap survey to adults who self-identify as having fibromuscular dysplasia to document the types of physical activity recommendations they received and how those recommendations affect daily life and emotions. The survey targets a broad, national population of English-speaking participants aged 18–100 and collects information on activity limits, counseling sources, and quality-of-life impacts. Because current guidance is based largely on expert opinion and varies across providers, the study aims to map real-world advice and its consequences for patients. Results will summarize the breadth of recommendations and their reported effects to inform future guidance and patient counseling.

Why it matters

Who can join: the full rules

Inclusion criteria:

* Participants with a diagnosis of fibromuscular dysplasia
* Age range = 18-100 years

Exclusion Criteria:

* Subjects who have an inability to complete the electronic consent form or electronic survey for any reason
* Subjects who are non-English speaking who cannot read the electronic consent form or electronic survey

Where it's running

• Vanderbilt University Medical Center
  Nashville, Tennessee, United States Recruiting

Study contacts

• Study coordinator: Amanda Morrison, MD
• Email: amanda.morrison@vumc.org
• Phone: 615-322-5000

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

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• Registry for Spontaneous Coronary Artery Dissection

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.