Childhood Cystic Kidney Disease Center: A Resource to Speed Pediatric PKD Translational Work
Official title: UAB Childhood Cystic Kidney Disease Center (UAB-CCKDC) - Childhood Clinical and Translational Resource
Funded at University of Alabama at Birmingham · NIH-11416763 · Data updated 2026-11-12
A pediatric-focused resource center is being funded to help researchers move new cystic kidney disease discoveries into treatments for children.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Alabama at Birmingham NIH-funded |
| Lab location | 1 site (Birmingham, United States) |
| Project start | July 20, 2020 |
| Project end | August 31, 2030 |
| Funding year | 2026 |
| Award (this year) | $118,203 |
| NIH project number | 5U54DK126087-07 |
| Project ID | NIH-11416763 on NIH RePORTER |
Who could benefit from this research
✓Could help
Pediatric patients with autosomal recessive or autosomal dominant polycystic kidney disease (ARPKD/ADPKD), or related hepatorenal fibrocystic diseases, particularly those enrolled in or contributing to pediatric PKD research networks.
✕Less likely to help
Children not enrolled in PKD research consortia or without access to participating sites may see limited direct benefit.
What this research studies
This grant supports a centralized hub that consolidates clinical data, genetic information, and biological samples from children with cystic kidney diseases. It aims to reduce barriers to pediatric PKD research by coordinating with national and international PKD networks and by expanding access to key resources. The center will enhance patient enrollment and data integration, including use of tools like ExtractEHR to streamline data extraction from electronic health records. Through collaboration with PKD consortia and translational cores, it seeks to accelerate development of novel therapies for childhood PKD.
Why it matters
Potential benefit: If successful, the resource could speed the identification of new treatments and improve data-sharing to benefit children with PKD.
How similar studies have gone: Other PKD research centers have demonstrated that centralized resources and data sharing can accelerate translational studies.
Where this research is happening
-
University of Alabama at Birmingham
Birmingham, United States Active
Researchers
- Principal investigator: Guay-Woodford, Lisa Marie — University of Alabama at Birmingham
- Study coordinator: Guay-Woodford, Lisa Marie
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.