Chronic Kidney Disease in Children follow-up study
Official title: Chronic Kidney Disease in Children (CKiD V)
Funded at Children's Mercy Hosp (Kansas City, Mo) · NIH-11588598 · Data updated 2026-11-12
A long-term study that follows kids with kidney disease as they grow into young adults, collecting health data from home and official records.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Children's Mercy Hosp (Kansas City, Mo) NIH-funded |
| Lab location | 1 site (Kansas City, United States) |
| Project start | September 30, 2003 |
| Project end | July 31, 2028 |
| Funding year | 2026 |
| Award (this year) | $20,000 |
| NIH project number | 3U01DK066143-24S1 |
| Project ID | NIH-11588598 on NIH RePORTER |
Who could benefit from this research
✓Could help
Children and adolescents with chronic kidney disease who can participate in remote data collection and follow-up.
✕Less likely to help
Patients with CKD who are unable to participate in remote data collection or who are not followed through young adulthood may derive limited direct benefits.
What this research studies
This study continues to track children with CKD over time and will also enroll 14- to 17-year-olds to strengthen our understanding of how kidney function declines and how heart health factors into the transition to adulthood. We will gather data remotely through home visits, online health records, and web-based surveys, using REDCap to coordinate care and harmonize with other CKD studies. Participants may provide lab results and vitals from home, and information will be integrated with electronic health records for a clearer picture of disease progression. A key goal is to identify early risk factors for faster kidney decline and to explore how puberty and acute kidney injuries influence long-term outcomes. Machine-learning approaches will be used to predict individual risk using clinical and social factors.
Why it matters
Potential benefit: If successful, the study could improve early identification of high-risk patients and inform personalized monitoring and care to slow CKD progression.
How similar studies have gone: Similar long-term CKD cohorts have shown that remote data collection and harmonized data sharing can yield meaningful insights into disease progression.
Where this research is happening
-
Children's Mercy Hosp (Kansas City, Mo)
Kansas City, United States Active
Researchers
- Principal investigator: Warady, Bradley Alan — Children's Mercy Hosp (Kansas City, Mo)
- Study coordinator: Warady, Bradley Alan
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.