Sickle cell disease registry at Ain Shams University
Official title: Hemoglobin Disorders in Egypt: Sickle Cell Disease Ain Shams University Institutional Registry
Run by Ain Shams University · NCT07800247 · Data updated 2026-11-12
This project creates an Ain Shams University registry of children and young people with sickle cell disease to track their health over time without providing a treatment.
Quick facts
| Study type | Observational |
|---|---|
| Ages | Any age to 39 Years |
| Sex | All |
| Enrollment | 400 (estimated) |
| Sponsor | Ain Shams University Academic / other |
| Locations | 2 sites (Cairo and 1 other locations) |
| Status | Recruiting |
| Started | March 17, 2024 |
| Main results expected | January 1, 2027 |
| Study ends | March 1, 2027 |
| Registry record updated | September 2, 2026 |
| Trial ID | NCT07800247 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Children, adolescents, and young adults with sickle cell disease who receive care at Ain Shams University facilities.
✕Probably not a fit
Patients with non-sickle cell inherited anemias or those not receiving care within the participating institutions may not benefit.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This observational study builds an institutional registry for sickle cell disease at the Hematology Oncology and BMT Department, Children’s Hospital, Ain Shams University in Cairo, Egypt. It starts as a retrospective description of past cases and will continue with prospective follow-up without intervention. The registry aims to collect clinical data to understand disease patterns, outcomes, and care needs over time. No experimental treatments are implemented through this registry. Participation is limited to individuals with sickle cell disease and excludes other inherited anemias, with data collected under the auspices of Ain Shams University and its clinical research center.
Why it matters
Potential benefit: If successful, the registry could improve understanding of sickle cell disease in this population and inform future care strategies.
How similar studies have gone: Other registries and observational studies in sickle cell disease have provided valuable epidemiologic and outcomes data, supporting the utility of this approach.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * children, adolescents and young adults with sickle cell disease Exclusion Criteria: * other inherited anemia
Where it's running
-
Faculty of Medicine Ain Shams Research Institute- Clinical Research Center
Cairo, Egypt Recruiting -
Faculty of medicine ain shams university
Cairo, Egypt Active not recruiting
Study contacts
- Study coordinator: Dr. Fatma Ebeid Ebeid
- Email: FatmaEbeid@med.asu.edu.eg
- Phone: +20 109 5569596
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.