Clinical trial Recruiting at 1 site Observational Ages Any age to 39

Sickle cell disease registry at Ain Shams University

Official title: Hemoglobin Disorders in Egypt: Sickle Cell Disease Ain Shams University Institutional Registry

Run by Ain Shams University · NCT07800247 · Data updated 2026-11-12

This project creates an Ain Shams University registry of children and young people with sickle cell disease to track their health over time without providing a treatment.

More Sickle Cell Disease (SCD) trials

Quick facts

Study typeObservational
AgesAny age to 39 Years
SexAll
Enrollment400 (estimated)
SponsorAin Shams University
Academic / other
Locations2 sites (Cairo and 1 other locations)
StatusRecruiting
StartedMarch 17, 2024
Main results expectedJanuary 1, 2027
Study endsMarch 1, 2027
Registry record updatedSeptember 2, 2026
Trial IDNCT07800247 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Children, adolescents, and young adults with sickle cell disease who receive care at Ain Shams University facilities.

Probably not a fit

Patients with non-sickle cell inherited anemias or those not receiving care within the participating institutions may not benefit.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study builds an institutional registry for sickle cell disease at the Hematology Oncology and BMT Department, Children’s Hospital, Ain Shams University in Cairo, Egypt. It starts as a retrospective description of past cases and will continue with prospective follow-up without intervention. The registry aims to collect clinical data to understand disease patterns, outcomes, and care needs over time. No experimental treatments are implemented through this registry. Participation is limited to individuals with sickle cell disease and excludes other inherited anemias, with data collected under the auspices of Ain Shams University and its clinical research center.

Why it matters

Potential benefit: If successful, the registry could improve understanding of sickle cell disease in this population and inform future care strategies.

How similar studies have gone: Other registries and observational studies in sickle cell disease have provided valuable epidemiologic and outcomes data, supporting the utility of this approach.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* children, adolescents and young adults with sickle cell disease

Exclusion Criteria:

* other inherited anemia

Where it's running

  • Faculty of Medicine Ain Shams Research Institute- Clinical Research Center
    Cairo, Egypt
    Recruiting
  • Faculty of medicine ain shams university
    Cairo, Egypt
    Active not recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.