National registry for Chinese patients with cystic fibrosis

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study aims to create a national registry for cystic fibrosis (CF) patients in China, focusing on understanding the prevalence, disease status, diagnosis, treatment, quality of care, and health-related outcomes. Given the rarity of CF in the Chinese population, this study seeks to fill the knowledge gap by collecting comprehensive data on affected individuals. The study will involve patients who meet specific clinical criteria and are in a stable health phase, ensuring accurate and relevant data collection.

Why it matters

Who can join: the full rules

Inclusion Criteria:

Fulfilled WHO clinical diagnostic criteria for CF; Was in a stable phase with no respiratory infections for nearly 4 weeks; Subjects (or their guardians) signed informed consent.

Exclusion Criteria:

Patients with other bronchiectasis who did not meet the inclusion criteria; Those with severe cardiac or renal disease

Where it's running

• Peking Union Medical College Hospital
  Beijing, Beijing Municipality, China Recruiting

Study contacts

• Study coordinator: Xinlun Tian, M.D.
• Email: tianxl@pumch.cn
• Phone: 86-10-69155039

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.