Database for Parkinson's Disease and Related Disorders

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study creates a comprehensive research database that includes demographic and family history information, clinical symptoms, neuropsychological profiles, treatments, biological samples, and brain images of patients with Parkinson's disease and related disorders. Participants are seen annually for the first four years and biennially thereafter, allowing for longitudinal analysis of the disease's progression and treatment effects. The database aims to facilitate research on the long-term effects of Parkinson's disease, identify genetic factors, and improve patient management strategies.

Why it matters

Who can join: the full rules

Inclusion Criteria:

Any person who receives medical care for the diagnosis of Parkinson's disease with mild cognitive impairment (MCI) or dementia may be eligible to participate in the research database. There are no limitations for database participation based on age, disease severity or presence of cognitive impairments, as long as the person is able to complete the research assessments.

Exclusion Criteria:

Absence of Parkinson's disease diagnosis. There are no limitations for database participation based on age, disease severity or presence of cognitive impairments, as long as the person is able to complete the research assessments.

Where it's running

• University of Pennsylvania
  Philadelphia, Pennsylvania, United States Recruiting

Study contacts

• Study coordinator: Eugenia Mamikonyan
• Email: eugenia.mamikonyan@pennmedicine.upenn.edu
• Phone: 215-615-3085

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.