Linking JIA Registry with Claims Data to Improve Understanding of Juvenile Arthritis
Official title: Study to Probe & Assess Registry-Claims Linkage for Juvenile Idiopathic Arthritis (SPARCLe-JIA)
Funded at Rutgers Biomedical and Health Sciences · NIH-11295916 · Data updated 2026-11-12
A study will connect the CARRA JIA patient registry with a large national claims database to see how well registry data match real-world care and outcomes for children with juvenile idiopathic arthritis.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Rutgers Biomedical and Health Sciences NIH-funded |
| Lab location | 1 site (Newark, UNITED STATES) |
| Project start | June 1, 2026 |
| Project end | April 30, 2029 |
| Funding year | 2026 |
| Award (this year) | $237,489 |
| NIH project number | 1R01AR085879-01A1 |
| Project ID | NIH-11295916 on NIH RePORTER |
Who could benefit from this research
✓Could help
Children and adolescents diagnosed with JIA whose data are captured in the CARRA Registry and/or Komodo claims database.
✕Less likely to help
Patients whose care is not represented in the registries or claims database may not directly benefit from the linkage.
What this research studies
If you or your child has JIA, this project will look at existing registry information and health insurance records to see how well they align and what extra details the combined data can reveal. Researchers will compare patients who are in both datasets with those in only one to identify gaps. They will also examine outcomes like uveitis and hospitalizations to understand how data linkage can support better studies and care decisions in the future.
Why it matters
Potential benefit: If successful, the linked data could enable more accurate and comprehensive studies on JIA, potentially guiding better treatment decisions and policy.
How similar studies have gone: Previous work shows that linking registries with claims data can improve data completeness, though this specific linkage and disease focus are novel.
Where this research is happening
-
Rutgers Biomedical and Health Sciences
Newark, United States Active
Researchers
- Principal investigator: Horton, Daniel Benjamin — Rutgers Biomedical and Health Sciences
- Study coordinator: Horton, Daniel Benjamin
Related research
Other NIH-funded projects on the same topics.
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Deciphering What Drives Juvenile Idiopathic Arthritis in African American Children
This project looks at why African American children with juvenile idiopathic arthritis have more joint damage, using clinical data and genetic information to find factors that may explain the differences.
-
Understanding how T cells make IFN-γ and IL-17 in kids with juvenile arthritis
A doctor-scientist at Vanderbilt is studying why certain immune cells in children with juvenile idiopathic arthritis produce inflammatory signals, with the goal of improving diagnosis and treatment.
-
Lung disease linked to systemic juvenile idiopathic arthritis in children
This project looks at how ongoing immune activation and some arthritis medicines may cause lung inflammation and breathing problems in children with systemic juvenile idiopathic arthritis (SJIA).
-
Investigating the role of viruses and gut bacteria in arthritis flares in children
This study is looking at how certain viruses and bacteria in the gut might affect flare-ups of juvenile idiopathic arthritis in kids, hoping to find clues that could help manage these painful episodes better.
-
Understanding lung disease in children with systemic juvenile idiopathic arthritis
This study is looking at how a serious lung problem in some kids with systemic juvenile idiopathic arthritis happens, and it aims to find new ways to help treat or prevent this issue by understanding how a certain part of their immune system works.
-
Understanding how immune cells produce inflammatory signals in children with arthritis
This study is looking at how certain immune cells in children with juvenile idiopathic arthritis produce substances that cause inflammation, and it hopes to find genetic clues that could help improve how we diagnose and treat this condition.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.