NIH-funded research U01 cooperative agreement

Exploring ethical data science practices in Southern Africa

Official title: Research for Ethical Data Science in Southern Africa (REDSSA)

Funded at Stellenbosch University · NIH-10897108 · Data updated 2026-11-12

This study is looking at how data science affects people in Southern Africa and wants to hear from the community about their experiences, so we can create helpful guidelines for using data responsibly and ethically.

Quick facts

Grant typeU01 cooperative agreement
Study typeNIH-funded research
Funding institutionStellenbosch University
NIH-funded
Lab location1 site (Stellenbosch, SOUTH AFRICA)
Project startSeptember 15, 2021
Project endJuly 31, 2026
Funding year2024
Award (this year)$376,418
NIH project number5U01MH127704-04
Project IDNIH-10897108 on NIH RePORTER

Who could benefit from this research

Could help

Ideal candidates for participation include individuals and communities in Southern Africa who are engaged with or affected by data science initiatives.

Less likely to help

Patients who are not involved in data science or do not reside in Southern Africa may not receive direct benefits from this research.

What this research studies

This research investigates the ethical, legal, and social implications of data science in Southern Africa. It aims to gather insights from stakeholders to develop context-specific guidelines for responsible data governance. The project will utilize crowdsourcing and citizen science to engage the public and gather empirical data on their experiences and challenges related to data science. Through interviews and innovative educational tools, the research seeks to strengthen the culture of ethical data practices in the region.

Why it matters

Potential benefit: If successful, this research could lead to improved ethical standards and practices in data science, benefiting communities and researchers alike.

How similar studies have gone: While the ethical implications of data science have been explored in various contexts, this specific approach focusing on Southern Africa is relatively novel.

Where this research is happening

  • Stellenbosch University
    Stellenbosch, South Africa
    Active

Researchers

  • Principal investigator: Moodley, Keymanthri — Stellenbosch University
  • Study coordinator: Moodley, Keymanthri

Related research

Other NIH-funded projects on the same topics.

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.