Disability, Diversity, and Data Sharing in Genomic Research for Better Chronic Disease Care
Official title: Disability, Disparities and Data Solidarity in Translational Genomic Research: The 3D-People Project
Funded at Columbia University Health Sciences · NIH-11422383 · Data updated 2026-11-12
This project aims to include people with disabilities in large genomic studies to help improve care for chronic diseases.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Columbia University Health Sciences NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project start | September 25, 2025 |
| Project end | July 31, 2030 |
| Funding year | 2026 |
| Award (this year) | $795,079 |
| NIH project number | 5R01HG014564-02 |
| Project ID | NIH-11422383 on NIH RePORTER |
Who could benefit from this research
✓Could help
Adults with disabilities who experience barriers to participating in genomic research or who are concerned about data sharing in research.
✕Less likely to help
People without disability-related barriers or those not currently engaged in genomic research may see limited direct benefit.
What this research studies
The project focuses on making translational genomic research more inclusive by understanding how people with disabilities can participate in genomic cohorts. Researchers will explore enrollment and retention challenges, as well as concerns about how data may be shared and used in the future. The study will examine current practices and identify strategies to ensure data stewardship is respectful and protective of participants’ needs. Results could guide more representative studies and better translation of genomic findings into real-world care for people with disabilities.
Why it matters
Potential benefit: If successful, the project could lead to more inclusive genomic research that improves prevention and treatment for chronic diseases among people with disabilities.
How similar studies have gone: There is growing recognition of the need for inclusive research, but on-the-ground practices involving people with disabilities in TGxR are still limited.
Where this research is happening
-
Columbia University Health Sciences
New York, United States Active
Researchers
- Principal investigator: Sabatello, Maya — Columbia University Health Sciences
- Study coordinator: Sabatello, Maya
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.