Disability Community Engagement for All of Us Enrollment and Retention
Official title: Disability Community Engagement Partner Project
Funded at American Assn on Health and Disability · NIH-11539117 · Data updated 2026-11-12
A patient-friendly plan to help people with disabilities join and stay in the All of Us program so researchers can learn how to tailor care.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | American Assn on Health and Disability NIH-funded |
| Lab location | 1 site (Rockville, United States) |
| Project start | July 1, 2021 |
| Project end | June 30, 2027 |
| Funding year | 2026 |
| Award (this year) | $499,997 |
| NIH project number | 3OT2OD031916-01S5 |
| Project ID | NIH-11539117 on NIH RePORTER |
Who could benefit from this research
✓Could help
Adults with disabilities who are interested in joining long-term health research and contributing to precision medicine studies.
✕Less likely to help
People who are not interested in long-term research participation or do not meet eligibility criteria for All of Us may not benefit.
What this research studies
This project partners with the All of Us Research Program to expand enrollment, keep participants engaged, and support recontact efforts, with a focus on disability communities. It will use outreach, education, and practical resources to facilitate participation and retention. The work involves coordinating with partner organizations and providing technical assistance to ensure broader and more accessible research participation.
Why it matters
Potential benefit: If successful, people with disabilities may have easier access to participating in precision medicine research and receive resources that support ongoing involvement.
How similar studies have gone: Past engagement efforts have shown that targeted outreach can improve enrollment and retention among underrepresented groups.
Where this research is happening
-
American Assn on Health and Disability
Rockville, United States Active
Researchers
- Principal investigator: Ditsch, Jacob — American Assn on Health and Disability
- Study coordinator: Ditsch, Jacob
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.