Condition

Alport Syndrome clinical trials and research

• 8Clinical trials
• 11Countries

Newest Alport Syndrome clinical trials

All recruiting trials (8)

• Periodontal Health in Rare Kidney Conditions and Controls

  This study tests how common periodontitis is in people with rare kidney disorders and compares it to CKD patients and people without kidney disease.

  Recruiting Institutul Clinic Fundeni · Bucharest · NCT07575347

• Registry for patients with Alport syndrome

  This study is creating a registry for people with Alport syndrome to share their health information, which will help researchers learn more about the condition and develop new treatments.

  Recruiting Alport Syndrome Foundation · Scottsdale, Arizona · NCT06526741

• National Registry for Rare Kidney Diseases

  This study is collecting health information from people with rare kidney diseases to help improve treatments and create better care guidelines.

  Recruiting UK Kidney Association · Bristol, South West · NCT06065852

• Observational study on Alport Syndrome

  This study is looking at how Alport syndrome affects people over time and whether new treatments that worked in animals can help improve their health and quality of life.

  Recruiting Institut National de la Santé Et de la Recherche Médicale, France · Paris, Île-de-France Region · NCT05927467

• Treatment of pediatric kidney diseases with Sparsentan

  This study is testing if a new oral medication called Sparsentan can help children aged 1 to 18 with certain kidney diseases feel better and improve their condition over two years.

  Recruiting at 38 sites Phase 2 Travere Therapeutics, Inc. · Los Angeles, California and 46 other locations · NCT05003986

• Understanding genetic factors in Alport Syndrome

  This study is trying to see how certain gene changes in families with Alport syndrome affect kidney problems and hearing loss.

  Recruiting Xinhua Hospital, Shanghai Jiao Tong University School of Medicine · Shanghai · NCT04947813

• NEPTUNE Match: Personalized matching of patients to kidney treatment options

  This project will try a system that matches people in the NEPTUNE cohort who have nephrotic syndromes or related kidney diseases with suitable clinical trials and shares those matches with patients and their doctors.

  Recruiting at 15 sites University of Michigan · Atlanta, Georgia and 15 other locations · NCT04571658

• Registry for delaying kidney failure in Alport syndrome

  This study is collecting information from patients with Alport syndrome to see if different medications can help delay kidney failure and improve their quality of life.

  Recruiting University Hospital Goettingen · Göttingen, Lower Saxony · NCT02378805

Related topics

Quick answers

How many Alport Syndrome clinical trials are recruiting right now?

8, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.

Where are these trials running?

In 11 countries. The most sites are in United States (3 trials), Germany (2 trials), United Kingdom (2 trials), China (1 trial), Italy (1 trial). Each study page lists its sites and which ones are recruiting.

What phases are they in?

Phase 2: 1. Trials with no phase listed are usually device, behavioural or observational studies.

How do I join one?

Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.

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