Clinical trial Recruiting at 1 site Observational Ages 18 and up

Registry for pancreatic cysts at UCSF

Official title: Population-Based Analysis of Neoplastic Changes in Cystic Lesions of the Pancreas.

Run by University of California, San Francisco · NCT04291651 · Data updated 2026-11-12

This study is setting up a registry to track patients with pancreatic cysts to see how these cysts change over time and to help doctors make better treatment decisions.

Quick facts

Study typeObservational
Ages18 Years and up
SexAll
Enrollment4000 (estimated)
SponsorUniversity of California, San Francisco
Academic / other
Locations1 site (San Francisco, California)
StatusRecruiting
StartedOctober 8, 2019
Main results expectedJanuary 1, 2030
Study endsJanuary 1, 2030
Registry record updatedSeptember 22, 2026
Trial IDNCT04291651 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates include adults aged 30 and older with a diagnosis of pancreatic cysts who can read and speak English.

Probably not a fit

Patients with a history of pancreatic cancer or those who do not speak English may not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study establishes a comprehensive registry for patients with pancreatic cysts at UCSF. It aims to collect and analyze data on the natural history and epidemiology of pancreatic cysts, particularly focusing on small cysts that pose diagnostic challenges. By following patients over time, the study seeks to identify factors that influence cyst progression and the potential risk of malignancy, ultimately improving clinical management and decision-making regarding treatment options.

Why it matters

Potential benefit: If successful, this registry could lead to better management strategies for pancreatic cysts, reducing unnecessary surgeries and improving patient outcomes.

How similar studies have gone: While there is limited information on similar registries, the approach of systematically collecting data on pancreatic cysts is promising and could provide valuable insights.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* The inclusion criteria for this study are intentionally broad. Eligible patients for prospective enrollment will include
* Adults ≥ 30 years of age
* Have a radiographic or endoscopic diagnosis of at least one pancreatic cysts regardless of treatment status,
* No history of pancreatic cancer,
* Can speak and read English,
* Have access to a computer or mobile device (\~95% of U.S. population); and
* Are able to complete an electronic informed consent.

Exclusion Criteria:

* Patients who don't speak English,
* Don't have access to a computer or mobile device; or
* Patients who have a cancer diagnosis.

Where it's running

  • University of California, San Francisco
    San Francisco, California, United States
    Recruiting

Study contacts

  • Principal investigator: Kimberly S Kirkwood, MD — University of California, San Francisco
  • Study coordinator: Charysa Santos, BS
  • Email: Charysa.Santos@ucsf.edu
  • Phone: 415-514-6914

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.