Observational study on kidney transplant recurrence in FSGS and MCD

Recurrence Post-transplant Observational Study in Focal Segmental Glomerulosclerosis (FSGS) and Minimal Change Disease (MCD)

Observational University of Michigan · NCT05650619

This study is looking at patients with kidney diseases called FSGS and MCD who have had or will have a kidney transplant to see how often these diseases come back afterward.

Quick facts

Study typeObservational
Enrollment300 (estimated)
SexAll
SponsorUniversity of Michigan Academic / other
Locations1 site (Ann Arbor, Michigan)
Trial IDNCT05650619 on ClinicalTrials.gov

What this trial studies

This observational study aims to gather data on patients with focal segmental glomerulosclerosis (FSGS) and minimal change disease (MCD) who have undergone or will undergo kidney transplantation. It will collect both retrospective and prospective data, along with biospecimens and patient-reported information, to better understand the incidence and prevalence of disease recurrence post-transplant. The study seeks to create a biorepository to support future research into the mechanisms and outcomes of these kidney diseases.

Who should consider this trial

Good fit: Ideal candidates include individuals diagnosed with FSGS or MCD who have received a kidney transplant since the year 2000.

Not a fit: Patients with pathologic diagnoses other than FSGS or MCD, or those with secondary forms of these diseases, may not benefit from this study.

Why it matters

Potential benefit: If successful, this study could lead to improved understanding and management of FSGS and MCD recurrence after kidney transplantation.

How similar studies have performed: While there have been smaller studies on FSGS and MCD, this multicenter approach is novel and aims to address limitations of previous research.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Retrospective non-consented participant group had a transplant from the year 2000 and onward.
* Diagnosis of FSGS or MCD in the native kidney (prior to transplant).

Exclusion Criteria:

* Pathologic diagnosis other than FSGS or MCD
* FSGS or MCD secondary to a known disorder (e.g. lupus nephritis, Immunoglobulin A (IgA) nephropathy, malignancy)

Where this trial is running

Ann Arbor, Michigan

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Focal Segmental GlomerulosclerosisMinimal Change DiseaseFSGSMCDKidney diseaseKidney transplantAdultChildren
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.