Healing ALS Registry (HAROS) for people with ALS, MND, and PLS

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

HAROS is a prospective, fully remote observational registry enrolling at least 1,000 people diagnosed with ALS, MND, or PLS who will complete monthly online entries including ALSFRS‑R scores, symptoms, medications, supplements, diets, therapies, and hours of self‑study or education. The study will correlate these longitudinal patient-reported data with physical outcomes to identify patterns linked with slower progression or improved function. Investigators will analyze conventional and integrative medicine approaches and educational engagement to explore associations with clinical trajectories. Data will be contributed by participants in the U.S. and other countries and analyzed to generate hypotheses for future controlled research.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Diagnosed with ALS, MND or PLS

Exclusion Criteria:

* Smokers

Where it's running

• Virtual
  Park City, Utah, United States Recruiting

Study contacts

• Principal investigator: William L Cowden, MD — Chair of Scientific Board of Academy of Comprehensive Integrative Medicine, Co-chair of Medical Advisory Team of Healing ALS
• Study coordinator: Healing ALS Study Administrator
• Email: Study@HealingALS.org
• Phone: 1-973-714-4621

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.