RECIPE: Connecting Sickle Cell Patients to Care for Better Outcomes
Official title: Recruitment and Engagement in Care to Impact Practice Enhancement (RECIPE) for Sickle Cell disease
Funded at University of Alabama at Birmingham · NIH-11417285 · Data updated 2026-11-12
A program to help adults with sickle cell disease get the care they need by identifying those not currently seeing a specialist and linking them to guideline-based services.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Alabama at Birmingham NIH-funded |
| Lab location | 1 site (Birmingham, United States) |
| Project start | August 15, 2022 |
| Project end | July 31, 2027 |
| Funding year | 2026 |
| Award (this year) | $1,641,480 |
| NIH project number | 5R01HL158807-05 |
| Project ID | NIH-11417285 on NIH RePORTER |
Who could benefit from this research
✓Could help
Adults with sickle cell disease who are not currently seeing an SCD specialist or receiving guideline-based care.
✕Less likely to help
Patients who are already consistently connected with SCD specialists or who choose not to pursue disease-specific care may see limited benefit.
What this research studies
This project aims to reduce the gap between what science knows and what care is delivered for sickle cell disease by finding unaffiliated patients and guiding them to appropriate SCD specialists. Researchers will adapt proven HIV outreach methods to identify patients, engage them, and connect them with care teams that provide screenings and disease-modifying treatments. The work builds on prior SCD research and uses patient input to shape how outreach and linkage are done in real-world clinics. It involves multiple stages of patient-oriented activities and implementation science to improve care delivery.
Why it matters
Potential benefit: If successful, more adults with sickle cell disease will receive appropriate, evidence-based care and treatment.
How similar studies have gone: Previous SCD work and HIV care models have informed effective engagement strategies, suggesting potential for meaningful impact.
Where this research is happening
-
University of Alabama at Birmingham
Birmingham, United States Active
Researchers
- Principal investigator: Kanter, Julie — University of Alabama at Birmingham
- Study coordinator: Kanter, Julie
Related research
Other NIH-funded projects on the same topics.
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-
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-
Mindfulness-based Support for Pain and Sleep in Young People with Sickle Cell Disease
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How diet affects white blood cells and sickle cell disease
A study looks at how nutrition, from early life to adulthood, influences sickle cell disease by examining neutrophils and disease severity in people with SCD and in a mouse model.
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Nutrition-based plan to ease pain in sickle cell disease
A nutrition-based approach is being tested to reduce pain for people living with sickle cell disease.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.