Nationwide diabetes surveillance for youth and young adults
Official title: Establishing a Nationwide Diabetes Surveillance System for Youth and Young Adults: Incidence, Prevalence, Risk Factors, Disparities, and Social Determinants of Health
Funded at Emory University · NIH-11423373 · Data updated 2026-11-12
A nationwide system will track how many young people have diabetes, how many are newly diagnosed, and what factors affect risk and disparities.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project start | September 30, 2025 |
| Project end | September 29, 2027 |
| Funding year | 2026 |
| Award (this year) | $699,999 |
| NIH project number | 5U18DP006922-02 |
| Project ID | NIH-11423373 on NIH RePORTER |
Who could benefit from this research
✓Could help
Youth and young adults with or at risk for type 1 or type 2 diabetes, identified through electronic health records and related data.
✕Less likely to help
Individuals without access to healthcare data or not captured in the COSMOS database may derive limited direct benefit.
What this research studies
This project will create and refine automated ways to identify diabetes in young people using a large Johns COSMOS EHR database, then measure how common type 1 and type 2 diabetes are over time. It will also look at social determinants of health, disparities, treatments, and complications to understand drivers behind youth-onset diabetes. By combining demographics, lab data, prescriptions, and social factors, researchers aim to produce a clearer, real-time picture of the disease in youth and young adults. The work builds on prior COSMOS experience to enable nationwide surveillance that can inform prevention and care strategies.
Why it matters
Potential benefit: If successful, clinicians and policymakers could use the surveillance to target prevention and improve care for youth with diabetes.
How similar studies have gone: Prior work using large electronic health records has improved surveillance; this project extends those methods to a nationwide, youth-focused context.
Where this research is happening
-
Emory University
Atlanta, United States Active
Researchers
- Principal investigator: Shao, Hui — Emory University
- Study coordinator: Shao, Hui
Related research
Other NIH-funded projects on the same topics.
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Obesity and GLP-1 treatment in young people with type 1 diabetes
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-
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Researchers are studying why some people with type 1 diabetes still develop heart disease even when traditional risk factors are controlled.
-
Why some teens develop type 2 diabetes
This project looks at how puberty, obesity, and social or behavioral factors may cause some adolescents to develop type 2 diabetes.
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Understanding Heart Disease Risks in People with Well-Controlled Type 1 Diabetes
This project looks at why people with Type 1 diabetes might still get heart disease, even when their other health factors are well-managed.
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Lifelong factors affecting brain health in type 1 diabetes (CLARiFY)
This project follows people who were diagnosed with type 1 diabetes in childhood into adulthood to find which lifelong health and lifestyle factors link to brain changes and thinking problems.
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Understanding and treating obesity in young people with type 1 diabetes
This research explores how a medication for obesity, called a GLP-1 analogue, helps young people with type 1 diabetes manage their weight and reduce heart-related health risks.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.