Improving privacy and security in genomic data sharing
iDASH Genome Privacy and Security Competition Workshop
This study is all about finding better ways to share genetic information safely and privately, so researchers can work together more easily while keeping your data secure and respecting your consent.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Yale University NIH-funded |
| Lab location | 1 site (New Haven, United States) |
| Project ID | NIH-11023134 on NIH RePORTER |
What this research studies
This research focuses on enhancing the privacy and security of genomic data sharing, which is crucial for advancing biomedical research. It addresses the challenges posed by privacy concerns that can prevent large-scale data sharing across institutions and countries. The project involves organizing competitions and workshops to evaluate innovative privacy and security models, while also engaging underrepresented researchers in these efforts. By developing new sociotechnical methods, the research aims to ensure that patient consent and data protection are prioritized in genomic studies.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals whose genomic data could contribute to biomedical research and who are concerned about the privacy and security of their information.
Not a fit: Patients who are not involved in genomic research or do not have concerns about data privacy may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to safer and more effective sharing of genomic data, ultimately accelerating advancements in personalized medicine.
How similar studies have performed: Previous research has shown success in developing privacy and security models for genomic data, indicating that this approach has potential for impactful advancements.
Where this research is happening
New Haven, United States
- Yale University — New Haven, United States (Active)
Researchers
- Principal investigator: Kuo, Tsung-Ting — Yale University
- Study coordinator: Kuo, Tsung-Ting
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.