Improving privacy and security in genomic data sharing
Official title: iDASH Genome Privacy and Security Competition Workshop
Funded at Yale University · NIH-11023134 · Data updated 2026-11-12
This study is all about finding better ways to share genetic information safely and privately, so researchers can work together more easily while keeping your data secure and respecting your consent.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Yale University NIH-funded |
| Lab location | 1 site (New Haven, United States) |
| Project start | February 16, 2023 |
| Project end | January 31, 2028 |
| Funding year | 2025 |
| Award (this year) | $20,000 |
| NIH project number | 5R13HG012902-04 |
| Project ID | NIH-11023134 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals whose genomic data could contribute to biomedical research and who are concerned about the privacy and security of their information.
✕Less likely to help
Patients who are not involved in genomic research or do not have concerns about data privacy may not benefit from this research.
What this research studies
This research focuses on enhancing the privacy and security of genomic data sharing, which is crucial for advancing biomedical research. It addresses the challenges posed by privacy concerns that can prevent large-scale data sharing across institutions and countries. The project involves organizing competitions and workshops to evaluate innovative privacy and security models, while also engaging underrepresented researchers in these efforts. By developing new sociotechnical methods, the research aims to ensure that patient consent and data protection are prioritized in genomic studies.
Why it matters
Potential benefit: If successful, this research could lead to safer and more effective sharing of genomic data, ultimately accelerating advancements in personalized medicine.
How similar studies have gone: Previous research has shown success in developing privacy and security models for genomic data, indicating that this approach has potential for impactful advancements.
Where this research is happening
-
Yale University
New Haven, United States Active
Researchers
- Principal investigator: Kuo, Tsung-Ting — Yale University
- Study coordinator: Kuo, Tsung-Ting
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.