Condition

Myotonic Dystrophy Type 1 clinical trials and research

• 8Clinical trials
• 1New in 30 days
• 3Countries

Newest Myotonic Dystrophy Type 1 clinical trials

All recruiting trials (8)

• Metabolomic biomarkers for myotonic dystrophy

  This study tests whether urine and blood tests, along with muscle function tests, can detect and measure myotonic dystrophy activity and severity without relying on muscle biopsies.

  Recruiting Massachusetts General Hospital · Boston, Massachusetts · NCT07912983

• Understanding long-term progression in myotonic dystrophy type 1 (DM1)

  This study will follow adults with DM1 for at least four years to see how walking, hand function, muscle strength, heart rhythms, and lung function change over time.

  Recruiting Virginia Commonwealth University · Richmond, Virginia · NCT07700225

• Understanding long-term progression in myotonic dystrophy type 1 (DM1)

  This study will follow adults with DM1 for at least four years to see how walking, hand function, muscle strength, heart rhythms, and lung function change over time.

  Recruiting Virginia Commonwealth University · Richmond, Virginia · NCT07700225

• Remote Assessments and Genetic Factors in Congenital and Childhood DM1

  This study tests how congenital, childhood, and juvenile DM1 affect kids by doing remote visits, activities, and a small blood sample to explore symptoms and genetics.

  Recruiting University of Rochester · Rochester, New York · NCT07630389

• Spanish National Registry for Myotonic Dystrophy Type 1

  This registry gathers health, clinical, and genetic information from people in Spain with DM1 to see how the condition changes over time and help match patients to future trials.

  Recruiting at 8 sites Fundació Institut Germans Trias i Pujol · Multiple Locations, Andalusia and 7 other locations · NCT07385443

• Pelvic floor muscle training for women with myotonic dystrophy

  This study is testing if pelvic floor muscle training can help women with myotonic dystrophy who have trouble with urinary incontinence feel better.

  Recruiting Université de Sherbrooke · Jonquière, Quebec · NCT06316778

• Examining cerebrospinal fluid in myotonic dystrophy

  This study is trying to see how changes in the fluid around the brain relate to brain activity in people with Myotonic Dystrophy Type 1 and healthy individuals.

  Recruiting Massachusetts General Hospital · Boston, Massachusetts · NCT06075693

• Registry for Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy

  This study is creating a registry for people with myotonic dystrophy or facioscapulohumeral muscular dystrophy to share their health information and connect with researchers working to learn more about these conditions.

  Recruiting University of Rochester · Rochester, New York · NCT00082108

Related topics

Quick answers

How many Myotonic Dystrophy Type 1 clinical trials are recruiting right now?

8, as of November 12, 2026. 1 of them was first registered in the last 30 days. We update this list each time we refresh our data from ClinicalTrials.gov.

Where are these trials running?

In 3 countries. The most sites are in United States (6 trials), Canada (1 trial), Spain (1 trial). Each study page lists its sites and which ones are recruiting.

How do I join one?

Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.

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