Condition
DM1 clinical trials and research
As of November 12, 2026, Find a Trial lists 5 DM1 clinical trials that are recruiting, at sites in 13 countries (most in United States (4), Germany (2), Italy (2)). By phase: Phase 3 (1). Every study is explained in plain English. Data from ClinicalTrials.gov and NIH RePORTER, updated November 12, 2026.
- 5Clinical trials
- 13Countries
Newest DM1 clinical trials
| Study | Phase | Where | Status | Registered |
|---|---|---|---|---|
| Understanding long-term progression in myotonic dystrophy type 1 (DM1) | — | Richmond, Virginia | Recruiting | Jul 13, 2026 |
| Remote monitoring and genetic analysis for myotonic dystrophy type 1 | — | Rochester, New York | Recruiting | Apr 1, 2026 |
| Zeleciment Basivarsen (DYNE-101) for people with myotonic dystrophy type 1 | Phase 3 | La Jolla, California and 43 other locations | Recruiting | Mar 23, 2026 |
| Spanish National Registry for Myotonic Dystrophy Type 1 | — | Multiple Locations, Andalusia and 7 other locations | Recruiting | Feb 4, 2026 |
| Identifying biomarkers and clinical endpoints in Myotonic Dystrophy Type 1 | — | La Jolla, California and 16 other locations | Recruiting | Jun 11, 2019 |
All recruiting trials (5)
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Understanding long-term progression in myotonic dystrophy type 1 (DM1)
This study will follow adults with DM1 for at least four years to see how walking, hand function, muscle strength, heart rhythms, and lung function change over time.
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Remote monitoring and genetic analysis for myotonic dystrophy type 1
This project will test if at-home remote tests plus a blood genetic sample can help explain why symptoms differ among adults with myotonic dystrophy type 1.
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Zeleciment Basivarsen (DYNE-101) for people with myotonic dystrophy type 1
This trial will test whether Zeleciment Basivarsen (DYNE-101) improves symptoms and is safe and tolerable for adults with myotonic dystrophy type 1.
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Spanish National Registry for Myotonic Dystrophy Type 1
This registry gathers health, clinical, and genetic information from people in Spain with DM1 to see how the condition changes over time and help match patients to future trials.
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Identifying biomarkers and clinical endpoints in Myotonic Dystrophy Type 1
This study is trying to learn more about Myotonic Dystrophy Type 1 by looking at how the disease affects around 700 adults over two years, including their muscle health and daily activities.
Related topics
Quick answers
How many DM1 clinical trials are recruiting right now?
5, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.
Where are these trials running?
In 13 countries. The most sites are in United States (4 trials), Germany (2 trials), Italy (2 trials), Netherlands (2 trials), New Zealand (2 trials). Each study page lists its sites and which ones are recruiting.
What phases are they in?
Phase 3: 1. Trials with no phase listed are usually device, behavioural or observational studies.
How do I join one?
Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.
Find the studies that fit you
A list is a starting point. Tell us your situation in your own words and we'll rank the studies that match and explain why. It's free and needs no account.