Condition
Myotonic Dystrophy Type 1 (DM1) clinical trials and research
As of November 12, 2026, Find a Trial lists 4 Myotonic Dystrophy Type 1 (DM1) clinical trials that are recruiting, at sites in 13 countries (most in United States (3), Australia (1), Belgium (1)). By phase: Phase 3 (1). Every study is explained in plain English. Data from ClinicalTrials.gov and NIH RePORTER, updated November 12, 2026.
- 4Clinical trials
- 13Countries
Newest Myotonic Dystrophy Type 1 (DM1) clinical trials
| Study | Phase | Where | Status | Registered |
|---|---|---|---|---|
| Understanding long-term progression in myotonic dystrophy type 1 (DM1) | — | Richmond, Virginia | Recruiting | Jul 13, 2026 |
| Remote monitoring and genetic analysis for myotonic dystrophy type 1 | — | Rochester, New York | Recruiting | Apr 1, 2026 |
| Zeleciment Basivarsen (DYNE-101) for people with myotonic dystrophy type 1 | Phase 3 | La Jolla, California and 43 other locations | Recruiting | Mar 23, 2026 |
| Personalized exercise treatment for adults with rare neuromuscular disorders | — | Bergen and 4 other locations | Recruiting | Nov 27, 2024 |
All recruiting trials (4)
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Understanding long-term progression in myotonic dystrophy type 1 (DM1)
This study will follow adults with DM1 for at least four years to see how walking, hand function, muscle strength, heart rhythms, and lung function change over time.
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Remote monitoring and genetic analysis for myotonic dystrophy type 1
This project will test if at-home remote tests plus a blood genetic sample can help explain why symptoms differ among adults with myotonic dystrophy type 1.
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Zeleciment Basivarsen (DYNE-101) for people with myotonic dystrophy type 1
This trial will test whether Zeleciment Basivarsen (DYNE-101) improves symptoms and is safe and tolerable for adults with myotonic dystrophy type 1.
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Personalized exercise treatment for adults with rare neuromuscular disorders
This study is testing if a personalized exercise program can help adults with rare neuromuscular disorders improve their balance and physical function better than regular care.
Related topics
Quick answers
How many Myotonic Dystrophy Type 1 (DM1) clinical trials are recruiting right now?
4, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.
Where are these trials running?
In 13 countries. The most sites are in United States (3 trials), Australia (1 trial), Belgium (1 trial), Denmark (1 trial), France (1 trial). Each study page lists its sites and which ones are recruiting.
What phases are they in?
Phase 3: 1. Trials with no phase listed are usually device, behavioural or observational studies.
How do I join one?
Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.
Find the studies that fit you
A list is a starting point. Tell us your situation in your own words and we'll rank the studies that match and explain why. It's free and needs no account.