Understanding rare autoinflammatory diseases and their key features
Official title: Diagnosis, Determining Factors, and Characteristics of Pathologies Associated With Autoinflammatory Diseases.
Run by Hospices Civils de Lyon · NCT07622069 · Data updated 2026-11-12
This study aims to see what genes and characteristics are linked to rare autoinflammatory diseases in adults and young people treated at a Lyon hospital.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 4 Years and up |
| Sex | All |
| Enrollment | 50 (estimated) |
| Sponsor | Hospices Civils de Lyon Academic / other |
| Locations | 1 site (Lyon) |
| Status | Recruiting |
| Started | September 9, 2025 |
| Main results expected | August 15, 2028 |
| Study ends | February 15, 2029 |
| Registry record updated | June 2, 2026 |
| Trial ID | NCT07622069 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Adults over 18 and youths aged 4.5 to 18 with a diagnosed rare autoinflammatory disease treated at the Hospices Civils de Lyon
✕Probably not a fit
Patients whose condition does not involve autoinflammation or who are not receiving care at the participating hospital are unlikely to benefit.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This observational study collects data on people with rare autoinflammatory diseases to describe their clinical features and possible genetic factors. Researchers will analyze how these conditions present, including patterns such as fever, rashes, and joint pain, to improve understanding of the diseases. The work is grounded in routine care at Hospices Civils de Lyon, focusing on patients aged 4½ and older who are treated at the participating center. No interventions are described beyond observational data collection.
Why it matters
Potential benefit: Better understanding of rare autoinflammatory diseases could lead to improved diagnosis and future treatment strategies.
How similar studies have gone: Observational descriptions of autoinflammatory diseases have informed clinical understanding in prior research, though specific findings will depend on this study population.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: \- Adult patient \> 18 years old Minor patient (aged 4 years and 6 months to 18 years) Patient diagnosed with a rare autoinflammatory disease Patient treated at the Hospices Civils de Lyon in the department participating in the research Patient affiliated with social security Exclusion Criteria: * none
Where it's running
-
Hôpital de la Croix-Rousse - Service de médecine interne - 103 Grande Rue de la Croix-Rousse
Lyon, France Recruiting
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.