Registry for tracking interstitial lung disease in Austria
Interstitial Lung Disease Registry Study: Prospective and Retrospective Observational Study in Austria
This study is setting up a registry to track information about interstitial lung disease in Austria to help understand how the disease progresses and how well treatments work.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 400 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Ludwig Boltzmann Institute for Lung Health Academic / other |
| Locations | 5 sites (Vienna and 4 other locations) |
| Trial ID | NCT06522334 on ClinicalTrials.gov |
What this trial studies
This registry aims to systematically collect and analyze epidemiological and clinical data related to interstitial lung disease from diagnosis through treatment and follow-up. It will document lung function, symptom control, adverse events, medication usage, survival rates, and mortality. The study is observational, meaning it will not involve any additional interventions beyond data collection. The goal is to enhance understanding of the disease's progression and treatment outcomes.
Who should consider this trial
Good fit: Ideal candidates for this registry are individuals diagnosed with interstitial lung disease who can provide informed consent.
Not a fit: Patients who do not understand the study or cannot provide informed consent may not benefit from this registry.
Why it matters
Potential benefit: If successful, this registry could provide valuable insights that improve the management and treatment of interstitial lung disease.
How similar studies have performed: While observational registries are common, this specific approach to systematically track interstitial lung disease data is relatively novel and may provide unique insights.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * diagnosis of interstitial lung disease * written informed consent Exclusion Criteria: * to not comprehend and rightfully judge participation
Where this trial is running
Vienna and 4 other locations
- Klinik Hietzing — Vienna, Austria (Recruiting)
- Klinik Penzing — Vienna, Austria (Recruiting)
- Ludwig Boltzmann Institut for Lung Health — Vienna, Austria (Recruiting)
- Klinik Ottakring — Vienna, Austria (Recruiting)
- Klinik Floridsdorf — Vienna, Austria (Recruiting)
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.