Registry for patients with Essential Tremor in China
The Chinese Essential Tremor Registry
This study is creating a registry to collect information from people with Essential Tremor in China to better understand the condition and its different forms.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 1000 (estimated) |
| Sex | All |
| Sponsor | Xiangya Hospital of Central South University Academic / other |
| Locations | 1 site (Changsha, Hunan) |
| Trial ID | NCT04198246 on ClinicalTrials.gov |
What this trial studies
The Chinese Essential Tremor Registry (CETR) aims to create a comprehensive database of patients diagnosed with Essential Tremor (ET) in China. This observational study will collect longitudinal data on clinical features, genetic factors, and environmental influences related to ET. By defining ET as a syndrome with various potential causes, the study seeks to enhance understanding of its pathophysiology and natural history. The goal is to identify key milestones in disease progression and improve the characterization of different ET subtypes within the Chinese population.
Who should consider this trial
Good fit: Ideal candidates for this study are individuals diagnosed with Essential Tremor according to established classification criteria.
Not a fit: Patients who lack the capacity to consent to participate in the project will not benefit from this study.
Why it matters
Potential benefit: If successful, this registry could lead to improved understanding and management of Essential Tremor, ultimately benefiting patients through better-targeted treatments.
How similar studies have performed: While the approach of creating a registry for Essential Tremor is not novel, it has the potential to yield valuable insights, as similar studies have successfully contributed to understanding other movement disorders.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Patients diagnosed with ET by the Consensus Statement on the Classification of Tremors,From the Task Force on Tremor of the International Parkinson and Movement Disorder Society. Exclusion Criteria: * Lack of capacity to consent to participate in the project.
Where this trial is running
Changsha, Hunan
- Xiangya Hospital of Central South University — Changsha, Hunan, China (Recruiting)
Study contacts
- Study coordinator: Qiying Sun, Ph.D
- Email: sunqiying2015@163.com
- Phone: +8615874907260
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.