Observing the causes and progression of cardiomyopathy

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study aims to gather data from individuals diagnosed with cardiomyopathy or those with a genetic predisposition to the condition. Participants will provide DNA and blood samples, along with detailed clinical and lifestyle information, which will be monitored over time during routine healthcare visits. The goal is to better understand the genetic and environmental factors influencing cardiomyopathy and its progression, ultimately leading to improved diagnostic and treatment strategies.

Why it matters

Who can join: the full rules

Inclusion Criteria:

Adults with the capacity to consent Children with parental/guardian consent Male and Female

Meeting the following criteria:

1. Patients with a confirmed diagnosis of cardiomyopathy or related condition
2. Patients with a family member with cardiomyopathy, or a related condition
3. Patients with a genetic variant that may predispose to cardiomyopathy, or a related condition

Exclusion Criteria:

Patients without the capacity to provide informed consent

Where it's running

• Guys & St Thomas' NHS Foundation Trust
  London, United Kingdom Recruiting
• Kings College Hospital
  London, United Kingdom Recruiting

Study contacts

• Principal investigator: James Ware — Imperial College London
• Study coordinator: Study Coordinator
• Email: smarter-cm@imperial.ac.uk
• Phone: 02073528121

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• Analyzing genetic mutations in pediatric cardiomyopathy

  This study is trying to learn more about the genetic causes of heart problems in children with cardiomyopathy to help improve diagnosis and treatment options for them.

  Recruiting Indiana University · Indianapolis, Indiana · NCT02432092

• Identifying patients with cardiomyopathy for potential heart transplantation

  This study is trying to find new ways to identify and understand cardiomyopathy in patients to better predict if they might need a heart transplant in the future.

  Recruiting IRCCS Azienda Ospedaliero-Universitaria di Bologna · Bologna, Emilia-Romagna/Bologna and 2 other locations · NCT06813443

• Study of heart conditions using advanced imaging techniques

  This study is trying to find out what causes different heart conditions in Hispanic and African American people in the Bronx by using advanced imaging techniques.

  Recruiting Montefiore Medical Center · The Bronx, New York · NCT06610019

• Hypertrophic Cardiomyopathy Registry, Biobank, and Imaging Data Repository

  This project tests whether collecting genetic, imaging, and clinical data from people with hypertrophic cardiomyopathy can help predict outcomes and better understand the disease.

  Recruiting at 15 sites Montreal Heart Institute · Edmonton, Alberta and 16 other locations · NCT05100420

• A quick 10-minute heart scan for cardiac diseases

  This study is testing a quick 10-minute heart scan to see if it can help diagnose heart problems better and faster for many patients without needing special dyes.

  Recruiting McGill University Health Centre/Research Institute of the McGill University Health Centre · Montreal, Quebec · NCT04464655

• Collecting biological samples and imaging data to study heart health and disease

  This study is collecting health information and samples from people with heart conditions and healthy volunteers to learn more about heart health and disease.

  Recruiting National Heart Centre Singapore · Singapore, Singapore · NCT02804269

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.