National Egyptian HLH Registry for pediatric patients
Official title: Establishing a National Egyptian HLH Registry (NEHR)
Run by Ain Shams University · NCT07800234 · Data updated 2026-11-12
A national HLH registry is being created in Egypt to collect information about pediatric HLH patients to improve understanding and care.
Quick facts
| Study type | Observational |
|---|---|
| Ages | Any age to 18 Years |
| Sex | All |
| Enrollment | 100 (estimated) |
| Sponsor | Ain Shams University Academic / other |
| Locations | 2 sites (Cairo and 1 other locations) |
| Status | Recruiting |
| Started | March 2, 2024 |
| Main results expected | January 1, 2028 |
| Study ends | December 1, 2028 |
| Registry record updated | September 2, 2026 |
| Trial ID | NCT07800234 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Pediatric patients diagnosed with HLH treated or evaluated at participating Egyptian centers.
✕Probably not a fit
Adults with HLH or patients not evaluated at the participating centers may not benefit from this registry.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This observational effort aims to establish a centralized registry for HLH cases in Egypt, led by Ain Shams University. The registry will compile demographic, clinical, and outcome data from participating centers to describe how HLH presents and is managed in the Egyptian pediatric population. No interventional procedures are involved; the study focuses on data collection and sharing to support future research and quality improvement. Sites include the Faculty of Medicine Pediatric Hematology Oncology Department in Cairo and Ain Shams University, with no listed collaborators. Participation is limited to patients diagnosed with HLH, excluding adults.
Why it matters
Potential benefit: The registry could enable better characterization of HLH in Egypt and support studies that improve diagnosis and management for children.
How similar studies have gone: Registries in other regions have helped clarify HLH patterns and outcomes and informed research priorities, though this is the first national Egyptian HLH registry.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * patients diagnosed with hlh Exclusion Criteria: * adults
Where it's running
-
Faculty of Medicine Pediatric Hematology Oncology Department
Cairo, Egypt Recruiting -
Faculty of medicine ain shams university
Cairo, Egypt Active not recruiting
Study contacts
- Study coordinator: Iman Ragab Prof of Pediatrics, Ain Shams University, Professor
- Email: hragab68@hotmail.com
- Phone: +20 1002550680
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.