Clinical trial Recruiting at 1 site Observational Ages Any age to 18

National Egyptian HLH Registry for pediatric patients

Official title: Establishing a National Egyptian HLH Registry (NEHR)

Run by Ain Shams University · NCT07800234 · Data updated 2026-11-12

A national HLH registry is being created in Egypt to collect information about pediatric HLH patients to improve understanding and care.

Quick facts

Study typeObservational
AgesAny age to 18 Years
SexAll
Enrollment100 (estimated)
SponsorAin Shams University
Academic / other
Locations2 sites (Cairo and 1 other locations)
StatusRecruiting
StartedMarch 2, 2024
Main results expectedJanuary 1, 2028
Study endsDecember 1, 2028
Registry record updatedSeptember 2, 2026
Trial IDNCT07800234 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Pediatric patients diagnosed with HLH treated or evaluated at participating Egyptian centers.

Probably not a fit

Adults with HLH or patients not evaluated at the participating centers may not benefit from this registry.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational effort aims to establish a centralized registry for HLH cases in Egypt, led by Ain Shams University. The registry will compile demographic, clinical, and outcome data from participating centers to describe how HLH presents and is managed in the Egyptian pediatric population. No interventional procedures are involved; the study focuses on data collection and sharing to support future research and quality improvement. Sites include the Faculty of Medicine Pediatric Hematology Oncology Department in Cairo and Ain Shams University, with no listed collaborators. Participation is limited to patients diagnosed with HLH, excluding adults.

Why it matters

Potential benefit: The registry could enable better characterization of HLH in Egypt and support studies that improve diagnosis and management for children.

How similar studies have gone: Registries in other regions have helped clarify HLH patterns and outcomes and informed research priorities, though this is the first national Egyptian HLH registry.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* patients diagnosed with hlh

Exclusion Criteria:

* adults

Where it's running

  • Faculty of Medicine Pediatric Hematology Oncology Department
    Cairo, Egypt
    Recruiting
  • Faculty of medicine ain shams university
    Cairo, Egypt
    Active not recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.