Multiple Sclerosis Implementation Network Registry
Multiple Sclerosis Implementation Network
This registry collects electronic health records and patient information to see if sharing data across clinics improves care and quality of life for people with multiple sclerosis.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 2000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | The University of Texas Health Science Center, Houston Academic / other |
| Locations | 3 sites (Cherry Hill, New Jersey and 2 other locations) |
| Trial ID | NCT07415824 on ClinicalTrials.gov |
What this trial studies
The Multiple Sclerosis Implementation Network (MSIN) is a collaborative registry that links participant electronic health records from multiple providers and institutions. It brings together clinicians, people with MS, advocacy organizations, and researchers in implementation science to identify and spread effective care practices. Participants agree to allow integration of their medical records and may provide additional information to support projects focused on care delivery and outcomes. The registry supports testing and dissemination of innovations aimed at making MS care more consistent and effective across sites.
Who should consider this trial
Good fit: Ideal candidates are people diagnosed with multiple sclerosis who can comfortably read and speak English and who are willing to allow their health records from participating providers to be included in the registry.
Not a fit: People without MS, those who cannot communicate in English, or individuals unwilling to share medical records are unlikely to benefit from or be eligible for this registry.
Why it matters
Potential benefit: If successful, the registry could speed uptake of best practices across clinics and improve health outcomes and quality of life for people with MS.
How similar studies have performed: Other disease registries and MS-focused implementation projects have helped identify care gaps and improve practice patterns, so this approach builds on established methods.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * diagnosed with Multiple Sclerosis * can speak and understand English comfortably
Where this trial is running
Cherry Hill, New Jersey and 2 other locations
- Multiple Sclerosis Association of America — Cherry Hill, New Jersey, United States (Recruiting)
- The University of Texas at Austin — Austin, Texas, United States (Recruiting)
- The University of Texas Health Science Center at Houston (UTHealth Houston) — Houston, Texas, United States (Recruiting)
Study contacts
- Study coordinator: Amanda Montague, EdM
- Email: AMontague@MYMSAA.org
- Phone: 800-532-7667
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.