Long-term effects of NMDAR encephalitis

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study collects patient-reported data using questionnaires to characterize long-term social and psychological outcomes after anti-NMDAR encephalitis. Adult patients (≥18) with confirmed NMDAR encephalitis who have internet access and are affiliated to a social security system are invited to participate. The study is coordinated by Hospices Civils de Lyon with collaboration from Charité University in Berlin and is conducted primarily via remote questionnaires. The goal is to fill gaps in knowledge about how the disease affects daily functioning and psychosocial well-being after the acute phase.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Patients with NMDAR encephalitis
* Age ≥ 18 years old
* Patient affiliated to a social security system
* No opposition from the patient
* Access to an internet connection and a computer

Exclusion Criteria:

* Patients whithout NMDAR encephalitis
* Patient under guardianship or curatorship
* Patient with neurological disorders pre-existing encephalitis

Where it's running

• Centre de référence des syndromes neurologies paranéoplasiques et encéphalites auto-immunes - Hôpital neurologiques Pierre WERTHEIMER - Groupement hospitalier Est - Hospices civiles de Lyon
  Bron, France Recruiting

Study contacts

• Study coordinator: Jérôme HONNORAT, Pr
• Email: jerome.honnorat@chu-lyon.fr
• Phone: 0472357806

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.