Collecting speech samples from individuals with speech difficulties
People With Speech Disabilities Contributing Speech Samples for Improved Accessibility of Speech-Enabled Devices
University of Illinois at Urbana-Champaign · NCT05889260
This study is collecting speech recordings from people with speech difficulties, especially those with Parkinson's, to help improve technology that understands spoken words.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 2000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | University of Illinois at Urbana-Champaign (other) |
| Locations | 2 sites (Denver, Colorado and 1 other locations) |
| Trial ID | NCT05889260 on ClinicalTrials.gov |
What this trial studies
The Speech Accessibility Project aims to gather and curate a large database of speech samples from individuals with atypical speech due to conditions like Parkinson's Disease and other neurological disorders. Over two years, the project will collect 1,200,000 samples from 2,000 participants, with an initial focus on Parkinson's patients. Participants will provide recordings at their convenience, and the data will be shared with researchers to enhance automatic speech recognition technologies. The project involves collaboration with various organizations to ensure a diverse and comprehensive dataset.
Who should consider this trial
Good fit: Ideal candidates include adults aged 18 and older with a self-reported diagnosis of Parkinson's Disease, ALS, Cerebral Palsy, Down Syndrome, or Stroke who can read and speak English.
Not a fit: Patients residing in Washington, Texas, or Illinois may not benefit due to state privacy laws preventing the collection of voice data.
Why it matters
Potential benefit: If successful, this project could significantly improve speech recognition technologies for individuals with speech impairments.
How similar studies have performed: While the approach of collecting speech samples is established, the scale and collaborative nature of this project may offer novel insights and advancements in the field.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Adult (age \>= 18 years) * Self-reported diagnosis of Parkinson's Disease, ALS, CP, DS, or Stroke * Reads and speaks English in the form of complete sentences * Has a valid email address * Ability to access web browser to participate in study Exclusion Criteria: * Is a resident of the State of Washington, Texas, or Illinois (because these states have privacy laws that would not allow us to collect 'voice prints') * If quality control screening of initial speech samples "fails" because of poor data quality (e.g., poor quality recording environment, or person's speech is "too typical" and not sufficiently interesting to continue collecting)
Where this trial is running
Denver, Colorado and 1 other locations
- LSVT Global — Denver, Colorado, United States (RECRUITING)
- University of Illinois at Urbana-Champaign — Urbana, Illinois, United States (RECRUITING)
Study contacts
- Principal investigator: Mark A Hasegawa-Johnson, Ph.D. — University of Illinois at Urbana-Champaign
- Study coordinator: Heather Hodges, MA, CCC-SLP
- Email: heather.hodges@lsvtglobal.com
- Phone: 1-888-309-6499
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Parkinson Disease, Progressive Supranuclear Palsy, Multiple System Atrophy, Dementia With Lewy Bodies