Collecting samples from children with brainstem tumors

Molecular Analysis of Samples From Patients With Diffuse Intrinsic Pontine Glioma and Brainstem Glioma

Observational Children's National Research Institute · NCT01106794

This study is trying to collect samples from children with brainstem tumors to see if they can find genetic clues that might help create better treatments for these tough cancers.

Quick facts

Study typeObservational
Enrollment100 (estimated)
AgesN/A to 21 Years
SexAll
SponsorChildren's National Research Institute Academic / other
Locations1 site (Washington D.C., District of Columbia)
Trial IDNCT01106794 on ClinicalTrials.gov

What this trial studies

This observational study aims to prospectively gather specimens from pediatric patients diagnosed with diffuse intrinsic pontine glioma (DIPG) or brainstem glioma, either during their treatment or at the time of autopsy. The focus is on characterizing the molecular abnormalities associated with these tumors, which are known to be highly lethal and currently lack effective therapies. By analyzing various biological samples, including serum, cerebrospinal fluid, and tumor tissue, the study seeks to identify genetic markers that could lead to the development of targeted treatments for these aggressive cancers.

Who should consider this trial

Good fit: Ideal candidates include pediatric patients with a clinical and radiologic diagnosis of diffuse intrinsic pontine glioma or other high-grade gliomas originating in the brainstem.

Not a fit: Patients with low-grade gliomas or those with brainstem tumors of different histological types may not benefit from this study.

Why it matters

Potential benefit: If successful, this study could lead to the identification of new biomarkers and therapeutic targets for treating pediatric brainstem tumors.

How similar studies have performed: While this study focuses on a specific molecular analysis approach, similar studies have shown promise in identifying genetic abnormalities in other types of tumors, suggesting potential for success.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Patients of any age with clinical and radiologic diagnosis of diffuse intrinsic pontine glioma
* Patients with other high-grade gliomas originating in the brainstem
* Patients with focal gliomas (WHO grade I/II) of the brainstem

Exclusion Criteria:

* Patients with any type of infiltrative low grade (WHO grade I and II) or high grade glioma (WHO grade III and IV) originating outside the brainstem
* Patients harboring primary brainstem tumors with other histologic diagnoses (e.g., PNET)

Where this trial is running

Washington D.C., District of Columbia

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Diffuse Intrinsic Pontine GliomaBrainstem Gliomadiffuse intrinsic pontine gliomaDIPGchildhood brainstem gliomapediatric brainstem gliomabrainstem gliomaBSG
Last reviewed 2026-06-09 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.