Biobank for interstitial lung diseases
Official title: University of Kansas Medical Center Interstitial Lung Disease Research Unit (ILDRU) Biobank
Run by University of Kansas Medical Center · NCT05392881 · Data updated 2026-11-12
This study is setting up a collection of health information and samples from patients with interstitial lung diseases to help researchers learn more about the condition and find better treatments.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 1000 (estimated) |
| Sponsor | University of Kansas Medical Center Academic / other |
| Locations | 1 site (Kansas City, Kansas) |
| Status | Recruiting |
| Started | August 9, 2021 |
| Main results expected | August 1, 2031 |
| Study ends | March 1, 2032 |
| Registry record updated | July 10, 2026 |
| Trial ID | NCT05392881 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates are patients aged 18 and older who are being treated for autoimmune diseases or interstitial lung diseases at the University of Kansas Medical Center.
✕Probably not a fit
Patients who do not have interstitial lung diseases or related conditions may not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This study aims to establish a registry and biorepository for patients with interstitial lung diseases (ILD) at the University of Kansas Medical Center. By collecting data and biological samples from patients, the researchers hope to enhance understanding of ILD, identify genetic and environmental risk factors, and discover potential treatment targets. The study will leverage the clinic's extensive patient base to facilitate research into early diagnosis and management of these conditions.
Why it matters
Potential benefit: If successful, this research could lead to improved diagnosis and treatment options for patients with interstitial lung diseases.
How similar studies have gone: While the approach of creating a biobank for ILD is not novel, it builds on previous successful initiatives aimed at understanding rare lung diseases.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: 1. The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP) 2. The participant is being followed for the presence of autoimmune disease, ILD or other rare lung diseases at TUKHS. 3. The participant is ≥ 18 years of age. 4. The participant has signed an approved consent for this study (living patients only)
Where it's running
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The University of Kansas Medical Center
Kansas City, Kansas, United States Recruiting
Study contacts
- Principal investigator: Scott Matson, M.D. — University of Kansas Medical Center
- Study coordinator: Kimberly Donnelly, Ph.D.
- Email: kdonnelly@kumc.edu
- Phone: 913-588-6067
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.