Understanding the experience of ovarian cancer after diagnosis to improve survivorship
Official title: UNTOLD: UNderstanding The experience of Ovarian cancer - Life after Diagnosis: A Mixed Methods Approach
Funded at University of Minnesota · NIH-11624191 · Data updated 2026-11-12
This NIH grant funds a mixed-methods study to better understand physical and emotional challenges faced by ovarian cancer survivors and how supportive care can help them live better after diagnosis.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Minnesota NIH-funded |
| Lab location | 1 site (Minneapolis, United States) |
| Project start | September 30, 2024 |
| Project end | September 29, 2027 |
| Funding year | 2025 |
| Award (this year) | $350,000 |
| NIH project number | 6U48DP006876-02M001 |
| Project ID | NIH-11624191 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ovarian cancer survivors at various times since diagnosis who are interested in sharing their experiences and outcomes related to physical and psychosocial well-being.
✕Less likely to help
Survivors who are not engaged with survivorship care or who have minimal unmet needs may see limited direct benefit.
What this research studies
The project focuses on women who have survived ovarian cancer, looking at both numbers and stories to capture what they experience after treatment. Researchers will combine numbers from surveys with in-depth interviews to paint a full picture of quality of life, symptoms, and psychosocial needs. They will explore how factors like time since diagnosis, age, race/ethnicity, and social support influence unmet needs and access to care, with the goal of informing better survivorship support. The study aims to identify barriers to supportive care and the most helpful interventions, both pharmacologic and non-pharmacologic, for improving daily living. The results could guide clinical guidance and resources for patients, families, and healthcare teams.
Why it matters
Potential benefit: Better understanding of survivorship needs could lead to more tailored support and services for ovarian cancer survivors.
How similar studies have gone: Previous work has shown that survivorship experiences vary by demographics and time since diagnosis, supporting the need for this mixed-methods approach.
Where this research is happening
-
University of Minnesota
Minneapolis, United States Active
Researchers
- Principal investigator: Vogel, Rachel Isaksson — University of Minnesota
- Study coordinator: Vogel, Rachel Isaksson
Related research
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Integrated framework to validate and quantify proteoforms in patient-derived ovarian cancer cells
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Overcoming platinum resistance in ovarian cancer: finding biomarkers and new targets
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Alternative NF-kB activation after chemotherapy in ovarian cancer
This grant studies how ovarian cancer might come back after chemotherapy by looking at specific signaling pathways in cancer cells and the tumor environment.
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Tumor-Niche Co-evolution in Ovarian Cancer Metastasis and Resistance
This research explores how ovarian cancer cells interact with their surrounding tissue to understand how metastasis and resistance to therapy develop, with potential to guide better treatments.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.