Understanding and improving care for people living with Alzheimer's disease and related dementias
Official title: Understanding and Improving Healthcare Decision-Making and Outcomes for People Living with Alzheimer's Disease and Related Dementias
Funded at National Bureau of Economic Research · NIH-11420385 · Data updated 2026-11-12
A program of research to help doctors, caregivers, and patients with Alzheimer’s disease and related dementias make better health choices and get better care.
Quick facts
| Grant type | P01 program project |
|---|---|
| Study type | NIH-funded research |
| Funding institution | National Bureau of Economic Research NIH-funded |
| Lab location | 1 site (Cambridge, United States) |
| Project start | February 1, 1997 |
| Project end | August 31, 2029 |
| Funding year | 2026 |
| Award (this year) | $3,185,633 |
| NIH project number | 5P01AG005842-37 |
| Project ID | NIH-11420385 on NIH RePORTER |
Who could benefit from this research
✓Could help
Individuals living with Alzheimer's disease or related dementias and their caregivers, across various healthcare settings.
✕Less likely to help
Patients without ADRD or those not engaged with the identified care pathways may not directly benefit.
What this research studies
This project brings together clinical and economic experts and large data sources to study how decisions about care are made and how these choices affect outcomes for people with ADRD. Using advanced data analytics and machine learning, the team aims to develop tools that support physicians in diagnosing and guiding treatment, even when patients have communication challenges. The work involves several component projects focusing on decision-making influences, access to care, and real-world effectiveness across diverse care settings. The program emphasizes the roles of providers, caregivers, and patients in navigating complex health needs.
Why it matters
Potential benefit: If successful, patients with ADRD could receive more timely, appropriate, and personalized care, improving outcomes and reducing unnecessary or fragmented services.
How similar studies have gone: Previous research using health data and analytics has shown promise in understanding care patterns and improving outcomes in ADRD, supporting the potential of this approach.
Where this research is happening
-
National Bureau of Economic Research
Cambridge, United States Active
Researchers
- Principal investigator: Simon, Kosali Ilayperuma — National Bureau of Economic Research
- Study coordinator: Simon, Kosali Ilayperuma
Related research
Other NIH-funded projects on the same topics.
-
Supported decision making to boost wellbeing for people with Alzheimer's and related dementias
This project looks at a way to help people with Alzheimer's and related dementias make better decisions with support from trusted others.
-
Improving decision-making support for people with Alzheimer's and related dementias
This work explores how a method called 'supported decision making' can help people with Alzheimer's disease and related dementias make their own health choices and feel better.
-
Improving decision-making for personalized care in Alzheimer's and diabetes patients
This study is all about finding better ways for older adults with Alzheimer's and diabetes to work together with their doctors to make personalized care decisions, using new technologies to improve communication and teamwork.
-
How Alzheimer's disease affects decision-making in mice
This study looks at how Alzheimer's disease affects the way mice make decisions, especially as they get older and considering their gender, to find ways that might help improve decision-making skills in people with Alzheimer's.
-
Understanding how culture influences decision-making in Alzheimer's disease and related dementias.
This study looks at how different cultures influence the experiences of people with Alzheimer's and their caregivers, aiming to create helpful tools that make it easier for everyone involved in their care to understand and manage the condition better.
-
How Decision Making Changes in Early Alzheimer's Disease
This research explores how older adults make decisions, particularly in financial and health matters, and how these abilities might change with early signs of Alzheimer's disease.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.