Shared Reading Support for Kids with Cleft Lip/Palate
Official title: Shared Reading Intervention for Children with Oral Clefts
Funded at Seattle Children's Hospital · NIH-11392729 · Data updated 2026-11-12
A family-friendly program helps children with oral clefts improve language and literacy through guided reading, coordinated with regular craniofacial visits and remote coaching for families in all areas.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Seattle Children's Hospital NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project start | September 10, 2021 |
| Project end | August 31, 2028 |
| Funding year | 2026 |
| Award (this year) | $707,566 |
| NIH project number | 5UH3DE029753-06 |
| Project ID | NIH-11392729 on NIH RePORTER |
Who could benefit from this research
✓Could help
Children with oral clefts aged 0-11 years who are receiving craniofacial care and their caregivers.
✕Less likely to help
Families not using or benefiting from a reading-based approach or those without access to smartphone video recording may see limited benefit.
What this research studies
This project creates a shared reading plan tailored for young children with oral clefts and tests it in craniofacial clinics at three major centers. Caregivers will record reading interactions on smartphones between clinic visits, and interventionists will review these videos to provide coaching and encouragement. The approach blends in-person sessions with remote coaching to reach families in rural or underserved communities. The study phase shown here is UG3 planning, finalizing the treatment protocol and research methods before broader testing. The goal is to make a scalable, culturally and linguistically appropriate program available to diverse families who navigate craniofacial care.
Why it matters
Potential benefit: If successful, families could see improved language skills and early literacy for their children with oral clefts.
How similar studies have gone: This is an early-development effort; prior interventions for this population are limited, making this approach relatively novel but grounded in shared-reading concepts.
Where this research is happening
-
Seattle Children's Hospital
Seattle, United States Active
Researchers
- Principal investigator: Collett, Brent Russell — Seattle Children's Hospital
- Study coordinator: Collett, Brent Russell
Related research
Other NIH-funded projects on the same topics.
-
Enhanced surveillance to understand vaccine-preventable infections in kids
This project actively follows children in Seattle to measure how common vaccine-preventable tummy and chest infections are and how well vaccines like flu and rotavirus work.
-
UMPIRE Protocol: Preserving Kidney Function in Young Children with Spina Bifida
A pediatric kidney-preservation study aims to improve long-term kidney function in young children with spina bifida.
-
Bioengineered human brain vessels to study cerebral malaria and explore new therapies
Researchers are testing a new 3D model of human brain blood vessels to understand how cerebral malaria causes damage and to identify possible adjunctive treatments for children.
-
Inflammation-linked autophagy problems in blood cells with sickle cell disease
A scientist is studying how inflammation from TNF-alpha affects autophagy in platelets and red blood cells of people with sickle cell disease to better understand why blood clotting and cell health go awry.
-
Malaria vaccine and infection: how the body’s early and later immune responses relate to protection
Researchers are studying how people’s immune systems respond to the malaria pre-erythrocytic stage, whether after vaccination or infection, to identify which responses are linked to protection.
-
Using a simple breathing test to check lung function after kids’ acute respiratory failure
A study will test a child-friendly breathing method (oscillometry) to check how well lungs work after severe respiratory illness in kids.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.