Patient-reported outcomes in lung disease due to non-tuberculous mycobacteria
Official title: Patient reported outcomes in patients with nontuberculous mycobacterial pulmonary disease
Funded at Oregon Health & Science University · NIH-11383438 · Data updated 2026-11-12
This grant funds research to understand how NTM lung disease affects daily life by asking patients about symptoms and well-being during and after treatment.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Oregon Health & Science University NIH-funded |
| Lab location | 1 site (Portland, United States) |
| Project start | August 1, 2023 |
| Project end | July 31, 2028 |
| Funding year | 2026 |
| Award (this year) | $561,335 |
| NIH project number | 5R01HL169759-04 |
| Project ID | NIH-11383438 on NIH RePORTER |
Who could benefit from this research
✓Could help
Adults typically over 21 with diagnosed NTM-PD (MAC or MAB) who are undergoing or have completed treatment.
✕Less likely to help
Patients without NTM-PD or those not engaged in treatment planning or symptom monitoring may not benefit.
What this research studies
People living with non-tuberculous mycobacterial pulmonary disease often face chronic cough, fatigue, and breathlessness. The study will gather patient-reported outcomes to capture how symptoms and treatments impact functioning and quality of life over time. It aims to identify which patient experiences matter most and how to track meaningful changes beyond traditional lab tests. The findings could guide patient-centered care and improve shared decision-making for complex, long-term therapies.
Why it matters
Potential benefit: If successful, this work could lead to better understanding of what matters most to patients and inform more patient-centered management of NTM-PD.
How similar studies have gone: Prior work has shown the value of patient-reported outcomes in chronic lung diseases, though specific PROs for NTM-PD are less established and this study addresses that gap.
Where this research is happening
-
Oregon Health & Science University
Portland, United States Active
Researchers
- Principal investigator: Henkle, Emily M. — Oregon Health & Science University
- Study coordinator: Henkle, Emily M.
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.