Colon Cancer Family Registry Cohort study for smarter prevention and care
Official title: Colon Cancer Family Registry Cohort
Funded at University of Melbourne · NIH-11513998 · Data updated 2026-11-12
A large international group is following thousands of people with colorectal cancer and their relatives to better understand risk, causes, and outcomes so future patients can get better guidance and treatment.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Melbourne NIH-funded |
| Lab location | 1 site (Melbourne, Australia) |
| Project start | May 1, 2013 |
| Project end | April 30, 2028 |
| Funding year | 2026 |
| Award (this year) | $205,018 |
| NIH project number | 3U01CA167551-15S1 |
| Project ID | NIH-11513998 on NIH RePORTER |
Who could benefit from this research
✓Could help
Individuals with colorectal cancer and their relatives who are part of the registry or who could contribute data, specimens, or tumor samples.
✕Less likely to help
Those not connected to the registry or not participating in follow-up may not directly benefit.
What this research studies
This project keeps a long-running registry of people with colorectal cancer and their families from the US, Canada, and Australia, collecting health data, blood samples, tumor materials, and genetic information. Researchers will maintain the cohort, continue five-year follow-ups, and add new ways to characterize cancer risk and prognosis to support future studies and improvements in prevention and care. The effort involves data sharing with scientists and ongoing participation from participants to provide up-to-date information. The goal is to enable discoveries that could inform screening, treatment decisions, and risk assessment for families affected by colorectal cancer and related cancers.
Why it matters
Potential benefit: If successful, this work could lead to better risk prediction, earlier detection, and more personalized prevention and treatment strategies for people at risk of colorectal cancer and other related cancers.
How similar studies have gone: The registry has supported hundreds of publications and external projects, showing a strong track record of value for cancer research.
Where this research is happening
-
University of Melbourne
Melbourne, Australia Active
Researchers
- Principal investigator: Jenkins, Mark a — University of Melbourne
- Study coordinator: Jenkins, Mark a
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.