Condition
Neurofibromatosis clinical trials and research
As of November 12, 2026, Find a Trial lists 4 Neurofibromatosis clinical trials that are recruiting, at sites in 3 countries (most in United States (2), Netherlands (1), Russia (1)). By phase: Phase 1 (1). Every study is explained in plain English. Data from ClinicalTrials.gov and NIH RePORTER, updated November 12, 2026.
- 4Clinical trials
- 3Countries
Newest Neurofibromatosis clinical trials
| Study | Phase | Where | Status | Registered |
|---|---|---|---|---|
| Imlygic (T-VEC) injections for cutaneous neurofibromas in adults with NF1 | Phase 1 | Baltimore, Maryland | Recruiting | Aug 3, 2025 |
| Clinical and demographic characteristics of adults with neurofibromatosis in Russia | — | Arkhangelsk and 15 other locations | Recruiting | Jul 28, 2025 |
| Observing the health management of patients with rare genetic syndromes | — | Rotterdam, South Holland | Recruiting | Jul 9, 2020 |
| Observing the progression of neurofibromatosis type 2 | — | Bethesda, Maryland | Recruiting | Jan 21, 2008 |
All recruiting trials (4)
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Imlygic (T-VEC) injections for cutaneous neurofibromas in adults with NF1
This trial will test whether injecting Imlygic into bothersome cutaneous neurofibromas can shrink them or reduce symptoms in adults with NF1 who want local treatment.
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Clinical and demographic characteristics of adults with neurofibromatosis in Russia
This project collects routine clinical and patient-reported information from adults in Russia who have neurofibromatosis with symptomatic plexiform neurofibromas to see how the condition affects their health and care.
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Observing the health management of patients with rare genetic syndromes
This study looks at how patients with rare genetic syndromes like Prader-Willi and Klinefelter manage their health as they move from children's care to adult care to see what support they need.
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Observing the progression of neurofibromatosis type 2
This study is trying to learn more about how neurofibromatosis type 2 affects people and what causes tumors to grow by following 269 participants over ten years with various tests and check-ups.
Related topics
Quick answers
How many Neurofibromatosis clinical trials are recruiting right now?
4, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.
Where are these trials running?
In 3 countries. The most sites are in United States (2 trials), Netherlands (1 trial), Russia (1 trial). Each study page lists its sites and which ones are recruiting.
What phases are they in?
Phase 1: 1. Trials with no phase listed are usually device, behavioural or observational studies.
How do I join one?
Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.
Find the studies that fit you
A list is a starting point. Tell us your situation in your own words and we'll rank the studies that match and explain why. It's free and needs no account.