Condition
Leigh Syndrome clinical trials and research
As of November 12, 2026, Find a Trial lists 3 Leigh Syndrome clinical trials that are recruiting, at sites in 4 countries (most in United States (2), Austria (1), Germany (1)). Every study is explained in plain English. Data from ClinicalTrials.gov and NIH RePORTER, updated November 12, 2026.
- 3Clinical trials
- 4Countries
Newest Leigh Syndrome clinical trials
| Study | Phase | Where | Status | Registered |
|---|---|---|---|---|
| Global registry for mitochondrial disorders | — | Innsbruck and 33 other locations | Recruiting | Sep 26, 2022 |
| Database for patients with Leigh syndrome | — | Houston, Texas | Recruiting | May 2, 2017 |
| Registry for patients with rare diseases | — | Sioux Falls, South Dakota | Recruiting | Feb 15, 2013 |
All recruiting trials (3)
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Global registry for mitochondrial disorders
This study is creating a global database for mitochondrial disorders to help understand these diseases better and improve future treatments for patients.
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Database for patients with Leigh syndrome
This study is creating a database to gather information from people with Leigh syndrome to better understand the condition and improve treatment options.
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Registry for patients with rare diseases
This study is creating a central registry for people with rare diseases to help connect them with researchers and improve treatments.
Related topics
Quick answers
How many Leigh Syndrome clinical trials are recruiting right now?
3, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.
Where are these trials running?
In 4 countries. The most sites are in United States (2 trials), Austria (1 trial), Germany (1 trial), Italy (1 trial). Each study page lists its sites and which ones are recruiting.
How do I join one?
Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.
Find the studies that fit you
A list is a starting point. Tell us your situation in your own words and we'll rank the studies that match and explain why. It's free and needs no account.