Condition
Alagille Syndrome clinical trials and research
As of November 12, 2026, Find a Trial lists 5 Alagille Syndrome clinical trials that are recruiting, at sites in 9 countries (most in United States (3), France (2), Italy (2)). By phase: Phase 4 (1). Every study is explained in plain English. Data from ClinicalTrials.gov and NIH RePORTER, updated November 12, 2026.
- 5Clinical trials
- 9Countries
Newest Alagille Syndrome clinical trials
| Study | Phase | Where | Status | Registered |
|---|---|---|---|---|
| See if odevixibat stays safe for kids and adults with Alagille syndrome over the long term | — | Bron and 13 other locations | Recruiting | May 13, 2026 |
| Long-term safety and outcomes of Livmarli for Alagille syndrome in the EU | Phase 4 | Brussels and 14 other locations | Recruiting | Dec 18, 2025 |
| Observing the long-term effects of odevixibat in patients with Alagille syndrome | — | Los Angeles, California and 9 other locations | Recruiting | Feb 27, 2025 |
| Evaluating the long-term safety and outcomes of Livmarli in patients with liver diseases | — | Los Angeles, California and 7 other locations | Recruiting | Jan 5, 2024 |
| Registry for patients with rare diseases | — | Sioux Falls, South Dakota | Recruiting | Feb 15, 2013 |
All recruiting trials (5)
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See if odevixibat stays safe for kids and adults with Alagille syndrome over the long term
This study tests whether continuing odevixibat is safe for people with Alagille syndrome who already take the drug in real life.
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Long-term safety and outcomes of Livmarli for Alagille syndrome in the EU
This study will follow people with Alagille syndrome who take Livmarli to see if it is safe, well tolerated over the long term, and continues to reduce cholestatic itching.
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Observing the long-term effects of odevixibat in patients with Alagille syndrome
This study looks at how well the medication odevixibat works and its safety for people with Alagille syndrome over a long period of time by collecting their real-life experiences.
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Evaluating the long-term safety and outcomes of Livmarli in patients with liver diseases
This study is testing how safe and effective the medication Livmarli is for people with Alagille syndrome or Progressive familial intrahepatic cholestasis over a five-year period.
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Registry for patients with rare diseases
This study is creating a central registry for people with rare diseases to help connect them with researchers and improve treatments.
Related topics
Quick answers
How many Alagille Syndrome clinical trials are recruiting right now?
5, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.
Where are these trials running?
In 9 countries. The most sites are in United States (3 trials), France (2 trials), Italy (2 trials), Belgium (1 trial), Germany (1 trial). Each study page lists its sites and which ones are recruiting.
What phases are they in?
Phase 4: 1. Trials with no phase listed are usually device, behavioural or observational studies.
How do I join one?
Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.
Find the studies that fit you
A list is a starting point. Tell us your situation in your own words and we'll rank the studies that match and explain why. It's free and needs no account.