Understanding patient experiences after severe seizures

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study aims to evaluate the long-term outcomes and patient-reported experiences of individuals who have survived status epilepticus, a life-threatening neurological emergency. It focuses on assessing the functional impairments and quality of life in patients who required intensive care management. By analyzing data from patients who were previously part of the ICTAL registry, the study seeks to provide insights into the cognitive, physical, and mental challenges faced by these individuals post-ICU discharge. The findings could help improve care strategies for future patients.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Adults 18 years old or older
* Patients previously included in the ICTAL registry (Status Epilepticus cohort NCT03457831)
* Survivors after ICU management for Status Epilepticus More than 3 months and less than 5 years after ICU discharge

Exclusion Criteria:

* Legal guardianship
* Opposition to participate
* Unread and unwritten French language
* Patient not affiliated to a Social Security system

Where it's running

• CH d'Angoulême
  Angoulême, France Recruiting
• CH de Béthune
  Béthune, France Recruiting
• CHU de Brest
  Brest, France Recruiting
• CH de Cannes
  Cannes, France Recruiting
• Hôpital Beaujon
  Clichy, France Recruiting
• Hôpital Henri Mondor
  Créteil, France Recruiting

Study contacts

• Study coordinator: Gwenaelle Jacq, RN,MSc,PhDc
• Email: gjacq@ght78sud.fr
• Phone: 33139638356

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• How a patient experience check-in helps people in intermediate and long-term care feel more trusted in the hospital

  This study tests whether identifying and acting on patient concerns in intermediate and long-term care units can help older patients trust the hospital more and reduce complaints.

  Recruiting Consorci Sanitari de l'Alt Penedès i Garraf · Vilanova i la Geltrú, Barcelona · NCT07926815

• Long-Term Recovery and Quality of Life after Sepsis in ICUs

  This international study follows adults with sepsis in ICUs to see how their quality of life and other outcomes look six months later.

  Recruiting University of Geneva, Switzerland · Geneva · NCT07863128

• AI care summaries to help caregivers understand their child’s hospitalization

  This trial tests whether an AI-generated plain-language summary of inpatient notes helps caregivers of hospitalized children understand their child’s care better.

  Recruiting Children's National Research Institute · Washington D.C., District of Columbia · NCT07831018

• Genomic changes of Klebsiella pneumoniae and Enterobacter cloacae in ICU patients over time

  This study tests how the gut bacteria Klebsiella pneumoniae and Enterobacter cloacae evolve over time in adults in ICUs.

  Recruiting University Hospital, Caen · Caen · NCT07744321

• Recovery after coma from serious brain injury or illness

  This observational study will follow adults who are unconscious due to a serious brain illness or injury to see what medical, neurological, psychological, and social factors are linked with recovery over time.

  Recruiting University of California, San Francisco · San Francisco, California · NCT07614074

• Early on-demand drinking to relieve thirst after urological endoscopy

  This test sees if allowing adults to drink on demand in the recovery room reduces thirst and improves satisfaction after elective urological endoscopic procedures.

  Recruiting Sindh Institute of Urology and Transplantation · Karachi, Sindh · NCT07563530

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.