Thailand ALS Patient Registry

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This prospective, observational, multicenter registry will enroll adults diagnosed with ALS at major academic hospitals and neuromuscular centers in Thailand and follow them longitudinally using standardized assessments. Data collected will include ALSFRS-R scores, staging systems (King, MiTos, 9-point), motor and respiratory function tests, quality-of-life measures, cognitive and behavioral evaluations, genetic profiles, and treatments received. All data will be entered into a secure REDCap database with protections under Thai PDPA and international standards. No experimental interventions are provided; the registry is intended to define epidemiology and natural history and to serve as a platform for future clinical and translational research.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Diagnosis of ALS according to El Escorial or Gold Coast criteria
* Age ≥ 18 years
* Ability and willingness to provide informed consent

Exclusion Criteria:

* Patients unwilling to provide informed consent
* Patients with alternative diagnoses mimicking ALS

Where it's running

• King Chulalongkorn Memorial hospital, The Thai Red Cross Society
  Pathum Wan, Bangkok, Thailand Recruiting

Study contacts

• Study coordinator: Jakkrit Amornvit, MD
• Email: jakkrit.a@chula.ac.th
• Phone: +66622169338

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.