Surveys to understand living with Parkinson's disease
Parkinson's Foundation Surveys
This study is collecting surveys from people with Parkinson's disease and their caregivers to learn more about their daily challenges and experiences.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 1000000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Parkinson's Foundation Academic / other |
| Locations | 1 site (Miami, Florida) |
| Trial ID | NCT05066763 on ClinicalTrials.gov |
What this trial studies
This initiative involves periodic surveys targeting individuals diagnosed with Parkinson's disease, their care partners, and healthcare professionals. The goal is to gather insights into the experiences and challenges faced by those living with Parkinson's. By collecting this data, the Parkinson's Foundation aims to enhance understanding and improve support for the Parkinson's community. The study is observational and non-interventional, focusing on self-reported experiences.
Who should consider this trial
Good fit: Ideal candidates include individuals diagnosed with Parkinson's disease, their care partners, and healthcare professionals who work with these patients.
Not a fit: Patients who do not have a diagnosis of Parkinson's disease or are not involved in the care of someone with PD may not benefit from this initiative.
Why it matters
Potential benefit: If successful, this initiative could lead to improved resources and support for patients living with Parkinson's disease.
How similar studies have performed: While this approach is observational and builds on existing knowledge, similar initiatives have successfully gathered valuable insights into patient experiences in other conditions.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Willingness to be contacted by the Parkinson's Foundation for surveys and any future research opportunities * Anyone who self-reports that they have a diagnosis of Parkinson's disease * Care partner of a person with Parkinson's disease * Any health professional that regularly works with people with Parkinson's disease * 18 years of age or older Exclusion Criteria: * People who report that they do not have a diagnosis of Parkinson's disease, are not a care partner to someone with PD or do not work with people with PD in the health setting * An individual younger than 18 years of age
Where this trial is running
Miami, Florida
- Parkinson's Foundation — Miami, Florida, United States (Recruiting)
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.