Survey on cancer survivor terminology and perceptions
What do Individuals Known to Palliative Care and Oncology Services Think About the Terminology Used to Describe Them?
This study is trying to understand how people receiving palliative care and those getting cancer treatment define and feel about the term 'cancer survivor' to improve their care services.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 1532 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Our Lady's Hospice and Care Services Academic / other |
| Locations | 3 sites (Dublin, County Dublin and 2 other locations) |
| Trial ID | NCT05871996 on ClinicalTrials.gov |
What this trial studies
This observational study aims to explore the varying definitions and perceptions of the term 'cancer survivor' among individuals receiving palliative care and those undergoing anti-cancer treatment. It will recruit 3,830 participants from multiple countries, including Australia, Canada, Ireland, the UK, and the USA, who will complete a survey during a one-time visit lasting under 30 minutes. The study seeks to understand how these patients view the term 'cancer survivor' and its implications for their care services.
Who should consider this trial
Good fit: Ideal candidates include adults aged 18 and older with a diagnosis of cancer who are currently receiving palliative care or anti-cancer treatment.
Not a fit: Patients who are unable to provide consent or complete the questionnaire will not benefit from this study.
Why it matters
Potential benefit: If successful, this study could lead to improved understanding and communication regarding cancer survivorship, ultimately enhancing the care provided to patients.
How similar studies have performed: While the concept of cancer survivorship has been explored, this specific focus on patient perceptions in the context of palliative care is relatively novel.
Eligibility criteria
Show full inclusion / exclusion criteria
Group 1: Individuals with a diagnosis of cancer known to palliative care services Inclusion criteria: * Diagnosis of cancer * Under the care of palliative care services as an inpatient, outpatient or community patient * Age ≥18 years * Able to speak / read English (enough to complete questionnaire) Exclusion criteria: * Unable to provide consent * Unable to complete questionnaire Group 2: Individuals with a diagnosis of cancer receiving anti-cancer treatment known to oncology services Inclusion criteria: * Diagnosis of cancer * Under the care of oncology services and currently receiving an anticancer treatment regimen of any kind * Age ≥18 years * Able to speak / read English (enough to complete questionnaire) Exclusion criteria: * Unable to provide consent * Unable to complete questionnaire
Where this trial is running
Dublin, County Dublin and 2 other locations
- St Vincent's University Hospital — Dublin, County Dublin, Ireland (Recruiting)
- Our Lady's Hospice & Care Services — Dublin, Ireland (Recruiting)
- Royal Surrey County Hospital — Guildford, Surrey, United Kingdom (Not_yet_recruiting)
Study contacts
- Principal investigator: Andrew N Davies, MBBS MSc MD — Our Lady's Hospice & Care Services
- Study coordinator: Amy GS Taylor, MBChB MRCP
- Email: ataylor@olh.ie
- Phone: 4986243
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.