Survey on cancer survivor terminology and perceptions
Official title: What do Individuals Known to Palliative Care and Oncology Services Think About the Terminology Used to Describe Them?
Run by Our Lady's Hospice and Care Services · NCT05871996 · Data updated 2026-11-12
This study is trying to understand how people receiving palliative care and those getting cancer treatment define and feel about the term 'cancer survivor' to improve their care services.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 1532 (estimated) |
| Sponsor | Our Lady's Hospice and Care Services Academic / other |
| Locations | 3 sites (Dublin, County Dublin and 2 other locations) |
| Status | Recruiting |
| Started | October 3, 2023 |
| Main results expected | October 2025 |
| Study ends | October 2025 |
| Registry record updated | June 27, 2025 |
| Trial ID | NCT05871996 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates include adults aged 18 and older with a diagnosis of cancer who are currently receiving palliative care or anti-cancer treatment.
✕Probably not a fit
Patients who are unable to provide consent or complete the questionnaire will not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This observational study aims to explore the varying definitions and perceptions of the term 'cancer survivor' among individuals receiving palliative care and those undergoing anti-cancer treatment. It will recruit 3,830 participants from multiple countries, including Australia, Canada, Ireland, the UK, and the USA, who will complete a survey during a one-time visit lasting under 30 minutes. The study seeks to understand how these patients view the term 'cancer survivor' and its implications for their care services.
Why it matters
Potential benefit: If successful, this study could lead to improved understanding and communication regarding cancer survivorship, ultimately enhancing the care provided to patients.
How similar studies have gone: While the concept of cancer survivorship has been explored, this specific focus on patient perceptions in the context of palliative care is relatively novel.
Who can join: the full rules
Show full inclusion / exclusion criteria
Group 1: Individuals with a diagnosis of cancer known to palliative care services Inclusion criteria: * Diagnosis of cancer * Under the care of palliative care services as an inpatient, outpatient or community patient * Age ≥18 years * Able to speak / read English (enough to complete questionnaire) Exclusion criteria: * Unable to provide consent * Unable to complete questionnaire Group 2: Individuals with a diagnosis of cancer receiving anti-cancer treatment known to oncology services Inclusion criteria: * Diagnosis of cancer * Under the care of oncology services and currently receiving an anticancer treatment regimen of any kind * Age ≥18 years * Able to speak / read English (enough to complete questionnaire) Exclusion criteria: * Unable to provide consent * Unable to complete questionnaire
Where it's running
-
St Vincent's University Hospital
Dublin, County Dublin, Ireland Recruiting -
Our Lady's Hospice & Care Services
Dublin, Ireland Recruiting -
Royal Surrey County Hospital
Guildford, Surrey, United Kingdom Not yet recruiting
Study contacts
- Principal investigator: Andrew N Davies, MBBS MSc MD — Our Lady's Hospice & Care Services
- Study coordinator: Amy GS Taylor, MBChB MRCP
- Email: ataylor@olh.ie
- Phone: 4986243
Similar studies
Other studies for the same condition or treatment. Recruiting studies are listed first.
-
Wearable ECG patch monitoring for people receiving end-of-life cancer care
This tests whether a small wearable ECG patch can remotely track vital signs for people with advanced cancer in hospice to help spot infections, relate symptoms to physiology, and improve estimates of how long someone may have to live.
-
Using remote monitoring to assess symptoms in palliative care patients
This study tests if using online check-ins and daily health tracking can help improve care for patients in palliative care and make their families feel more supported.
How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.