Reproductive experiences and fertility in adults with primary ciliary dyskinesia

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational qualitative project will conduct one-on-one interviews with adults in the United Kingdom who have a confirmed or likely diagnosis of primary ciliary dyskinesia. Interviews will explore personal experiences with fertility, conception, pregnancy, parenting, and interactions with healthcare services. Participants will give informed consent and may take part in in-person or remote interviews led by researchers at University Hospitals Southampton, with responses anonymized and analysed thematically. The study involves no medical intervention and aims to identify needs, barriers, and areas where care and support could be improved.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Lives in United Kingdom
* 'likely' or 'confirmed' diagnosis of PCD
* able and willing to sign the consent form

Exclusion Criteria:

* unwilling to participate in the study
* not meeting inclusion criteria

Where it's running

• University Hospitals Southampton NHS Trust
  Southampton, United Kingdom Recruiting

Study contacts

• Study coordinator: Lydia Newman
• Email: Lydia.newman@soton.ac.uk
• Phone: 02381206033

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Other studies for the same condition or treatment. Recruiting studies are listed first.

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• Glycine and magnesium plus thiamine for primary ciliary dyskinesia

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.