Registry of Parkinson's disease patients in China
The Chinese Parkinson's Disease Registry
This study is trying to build a detailed database of people with Parkinson's disease in China to learn more about how the disease progresses and what factors might affect it.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 3000 (estimated) |
| Sex | All |
| Sponsor | Xiangya Hospital of Central South University Academic / other |
| Locations | 1 site (Changzhi, Hunan) |
| Trial ID | NCT03887663 on ClinicalTrials.gov |
What this trial studies
The Chinese Parkinson's Disease Registry aims to create a comprehensive database of patients diagnosed with Parkinson's disease in China. This observational study will collect longitudinal data on various clinical features, genetic factors, and environmental influences affecting different subtypes of Parkinson's disease. By following patients over time, the study seeks to better understand the natural history of the disease and identify key milestones in its progression. Data will be gathered through routine follow-up visits, utilizing standardized neurological assessments and detailed questionnaires.
Who should consider this trial
Good fit: Ideal candidates for this study are patients diagnosed with Parkinson's disease according to established diagnostic criteria.
Not a fit: Patients who lack the capacity to consent to participate in the project will not benefit from this study.
Why it matters
Potential benefit: If successful, this registry could enhance understanding of Parkinson's disease in the Chinese population, leading to improved diagnosis and treatment strategies.
How similar studies have performed: Other studies have successfully established registries for Parkinson's disease, indicating that this approach is both viable and beneficial for understanding the condition.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Patients diagnosed with PD by UK Brain Bank Diagnostic Criteria and other standard criteria. Exclusion Criteria: * Lack of capacity to consent to participate in the project
Where this trial is running
Changzhi, Hunan
- Xiangya Hospital of Central South University — Changzhi, Hunan, China (Recruiting)
Study contacts
- Study coordinator: Qiying Sun, Ph.D
- Email: sunqiying2015@163.com
- Phone: +8615874907260
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.