Registry for understanding Amyotrophic Lateral Sclerosis in the U.S.
The National Amyotrophic Lateral Sclerosis Registry
This study is collecting information about ALS in the U.S. to see how common it is and what factors might be linked to the disease.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 30000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Centers for Disease Control and Prevention Federal |
| Locations | 1 site (Atlanta, Georgia) |
| Trial ID | NCT01772602 on ClinicalTrials.gov |
What this trial studies
This registry aims to gather comprehensive data on the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States. It will investigate various factors, including environmental and occupational influences, that may be linked to the disease. Additionally, the registry will analyze demographic information such as age, race, gender, and family history of individuals diagnosed with ALS. The initiative also seeks to clarify the relationship between ALS and other motor neuron disorders that may be misdiagnosed as ALS.
Who should consider this trial
Good fit: Ideal candidates for this registry are U.S. citizens aged 18 years or older who have been diagnosed with ALS.
Not a fit: Patients who are not diagnosed with ALS or are under 18 years old may not receive any benefit from this registry.
Why it matters
Potential benefit: If successful, this registry could enhance understanding of ALS, leading to improved diagnosis and treatment options for patients.
How similar studies have performed: Other registries and observational studies have successfully contributed to the understanding of ALS and related conditions, indicating that this approach is valuable.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: \- U.S. citizens 18 years of age or older Exclusion Criteria: \-
Where this trial is running
Atlanta, Georgia
- Cdc — Atlanta, Georgia, United States (Recruiting)
Study contacts
- Principal investigator: Paul Mehta, MD — Centers for Disease Control and Prevention
- Study coordinator: Paul Mehta, MD
- Email: PMehta1@cdc.gov
- Phone: 770-488-0556
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.